Dad has multiple myeloma and is getting worse

Hi everyone i posted briefly about 11 months ago but guess i wasnt ready at the time 

Brief history dad became poorly last oct ( 2020) he was admitted to hospital with pnumonia and a week later was sent home after being told he had multiple myeloma we were all in shock but hopeful as hes a very positive person . A month or two later he had a chest x-ray an told he also had pulmonary fibrosis ! ( just to explain the extent of the shock hes never ill and never takes even a paracetamol!) 

he was offered no help with the fibrosis indeed the dr said the cancer would probably get him first!!

he took ill again just over a month ago ( had been tiring easily an bit forgetful) we had paramedics out twice who on second call admitted him due to covid we could only ring cancer ward who said he was on mend an sent him home two weeks ago ( i might add his discharge note said sepsis although we were never told!!) 

since being home he is very frail sleeps more and does not eat much he gets up when he can and tries to make us laugh but im so worried he had an mri scan last thursday and we see the consultant next thursday 

i suppose what im asking is ' is this it'! Im scared about what happens next my mum is looking ill with the stress and my eldest son and I are the ones who try and help most but i worry for him too and in truth my dad is 83 I am 55 but not ready to lose him yet 

thank you if you persevered this far and I hope I havnt sounded selfish i really am just scared and trying to care for dad mum an my kids so any advice or hint of how to manage going forward would be so grateful 

Thank you

x

 

Parents
  • Hi my dad was diagnosed last feb …. He’s 82 end of life three times with infection he was in hospital 16 weeks at first ! He’s list most of his mobility and it’s so hard he was so active caravaning each weekend ! He lives alone mum died ten years ago ….. Thers only me it’s so hard he has care four times a day , Iv tryed to do all I can …..he has  catheter that’s a nightmare! I worry what’s going to happen how will it happen what do I do ! Will I just find him one day or will infection get him I’m scared of the death ! As he not in acceptance of it …… I think he will fight till the end ! Half of me wants him to say , it’s ok it’s gonna be alright but he dosent he cry’s and just doesn’t cope at all ……… it’s arful ! I surpose I take one day at a time he’s become so attached to me I’m working going ther each day it’s very difficult xx 

Reply
  • Hi my dad was diagnosed last feb …. He’s 82 end of life three times with infection he was in hospital 16 weeks at first ! He’s list most of his mobility and it’s so hard he was so active caravaning each weekend ! He lives alone mum died ten years ago ….. Thers only me it’s so hard he has care four times a day , Iv tryed to do all I can …..he has  catheter that’s a nightmare! I worry what’s going to happen how will it happen what do I do ! Will I just find him one day or will infection get him I’m scared of the death ! As he not in acceptance of it …… I think he will fight till the end ! Half of me wants him to say , it’s ok it’s gonna be alright but he dosent he cry’s and just doesn’t cope at all ……… it’s arful ! I surpose I take one day at a time he’s become so attached to me I’m working going ther each day it’s very difficult xx 

Children
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