Dad has multiple myeloma and is getting worse

Hi everyone i posted briefly about 11 months ago but guess i wasnt ready at the time 

Brief history dad became poorly last oct ( 2020) he was admitted to hospital with pnumonia and a week later was sent home after being told he had multiple myeloma we were all in shock but hopeful as hes a very positive person . A month or two later he had a chest x-ray an told he also had pulmonary fibrosis ! ( just to explain the extent of the shock hes never ill and never takes even a paracetamol!) 

he was offered no help with the fibrosis indeed the dr said the cancer would probably get him first!!

he took ill again just over a month ago ( had been tiring easily an bit forgetful) we had paramedics out twice who on second call admitted him due to covid we could only ring cancer ward who said he was on mend an sent him home two weeks ago ( i might add his discharge note said sepsis although we were never told!!) 

since being home he is very frail sleeps more and does not eat much he gets up when he can and tries to make us laugh but im so worried he had an mri scan last thursday and we see the consultant next thursday 

i suppose what im asking is ' is this it'! Im scared about what happens next my mum is looking ill with the stress and my eldest son and I are the ones who try and help most but i worry for him too and in truth my dad is 83 I am 55 but not ready to lose him yet 

thank you if you persevered this far and I hope I havnt sounded selfish i really am just scared and trying to care for dad mum an my kids so any advice or hint of how to manage going forward would be so grateful 

Thank you

x

 

Parents
  • Hi there my dad died 5 weeks ago from myeloma cancer he was 63 he struggled to eat and had several blood transfusions before death we did not know about the cancer .cancer is unpredictable I thought my dad was getting better after some radiotherapy and he died in a week I then read further on death and found they tend to get better before they get worse I'm probably waffling here and not giving any advice at all but I'll just say a few words spend what time you can with him talk about his last wishes do not forget this as it's useful if he hasent got a will be sure to get it down on paper my dad did not have one and I may now loose my home and my 4 kids live in his home because intestancy rules it has to be split your parent has done well being 83 but under stable you don't want to loose him yet.also don't worry about what you have no control over as I said my dads looked fine then died you don't know when it will be!I understand the sepsis thing my dad had an infection but the cancer killed him they couldn't do much because the cancer took over and the infection was in the way of it which then made his body fail try not to be scared take it as a new path of life your dad will be in a better place no pain although it's hard to think that it's the truth you may have more time yet just take each day as it comes 

Reply
  • Hi there my dad died 5 weeks ago from myeloma cancer he was 63 he struggled to eat and had several blood transfusions before death we did not know about the cancer .cancer is unpredictable I thought my dad was getting better after some radiotherapy and he died in a week I then read further on death and found they tend to get better before they get worse I'm probably waffling here and not giving any advice at all but I'll just say a few words spend what time you can with him talk about his last wishes do not forget this as it's useful if he hasent got a will be sure to get it down on paper my dad did not have one and I may now loose my home and my 4 kids live in his home because intestancy rules it has to be split your parent has done well being 83 but under stable you don't want to loose him yet.also don't worry about what you have no control over as I said my dads looked fine then died you don't know when it will be!I understand the sepsis thing my dad had an infection but the cancer killed him they couldn't do much because the cancer took over and the infection was in the way of it which then made his body fail try not to be scared take it as a new path of life your dad will be in a better place no pain although it's hard to think that it's the truth you may have more time yet just take each day as it comes 

Children
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