I'm really pleased the steroids have had such a good impact on your OH Snoopy6691. It must be wonderful to see your OH with an appetite and a bit more energy again.

Your husband's palliative care team should be able to answer your questions about the steroids but I hope this discussion that was started on the forum last year will help as well.

I hope you hear back from some of our our members soon but if you'd like to get to speak with our cancer nurses about this, they're just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

Best wishes to you both,

Steph, Cancer Chat Moderator

Hi Snoopy6691,

Just wanted to say, I am in a similar situation to you. Husband has mesothelioma,  has been having chemo, then immunotherapy now chemo again. He has lost so much weight, he is frail and aged 10 years. 

We have a scan next week, and have reached the point where we are thinking no more chemo. But we will await the scan results.

When he had a 20 day course of steroids a few months ago, they really boosted his well being and appetite,  we came to think of them as magic drugs!  I think there was a fall afterwards, that's the problem because then it's all back to the symptoms. I know long term steroids can do harm, but at this stage for us I dont think it matters that much...so I am going to ask for him to have a course so that he may start to recover a bit and regain his appetite.  Quality of life is what matters most for us.

Wishing you and your OH the very best

Minniepippa x