Hi Snoopy6691,

Just wanted to say, I am in a similar situation to you. Husband has mesothelioma,  has been having chemo, then immunotherapy now chemo again. He has lost so much weight, he is frail and aged 10 years. 

We have a scan next week, and have reached the point where we are thinking no more chemo. But we will await the scan results.

When he had a 20 day course of steroids a few months ago, they really boosted his well being and appetite,  we came to think of them as magic drugs!  I think there was a fall afterwards, that's the problem because then it's all back to the symptoms. I know long term steroids can do harm, but at this stage for us I dont think it matters that much...so I am going to ask for him to have a course so that he may start to recover a bit and regain his appetite.  Quality of life is what matters most for us.

Wishing you and your OH the very best

Minniepippa x

Hi Snoopy6691,

Just wanted to say, I am in a similar situation to you. Husband has mesothelioma,  has been having chemo, then immunotherapy now chemo again. He has lost so much weight, he is frail and aged 10 years. 

We have a scan next week, and have reached the point where we are thinking no more chemo. But we will await the scan results.

When he had a 20 day course of steroids a few months ago, they really boosted his well being and appetite,  we came to think of them as magic drugs!  I think there was a fall afterwards, that's the problem because then it's all back to the symptoms. I know long term steroids can do harm, but at this stage for us I dont think it matters that much...so I am going to ask for him to have a course so that he may start to recover a bit and regain his appetite.  Quality of life is what matters most for us.

Wishing you and your OH the very best

Minniepippa x

Evening Minniepippa 

Thanks for the reply

The Palliative Dr called today and when she said there were side effects I did reply "worse than all the symptoms they have removed this last week?"    We agree with you, at this late stage an appetite, feeling better and a better quality of life is what we're all after 

She's told him to reduce from 4mg a day to 2mg next Thurs and see how that goes. Also given us signs to look out for and report if we see them.   

We've booked another Sunday lunch and our kids are coming over on Friday (Don lives about 3 hrs away so don't see him much) do that's going to cheer us both up!

Going to have the money discussion   , funeral discussion and the "what mums going to do when she's on her own" discussion so they both know from him what he wants to happen.  I'm 55 so he wants me to travel, live life and just not to "hook up with any loser who just wants your money "     Honestly   he's a one!!!!!  Still laughing and being inappropriate  

Hope the scan results aren't as bad as feared for you both.  It's horrible just waiting so chin up xxxx