Throat cancer

My husband has been diagnosed with throat cancer. I have no idea what type or what stage. He has been told he's had it for a long time. What does this mean.? We only noticed loss of voice in May this year. He's not had any other symptoms. He's had a biopsy and yesterday he had an operation to try to remove it. The surgeon couldn't but she's managed to clear his airways. He's been told that he will need chemotherapy and radiotherapy. He's had a scan. I feel like im just useless. I have no idea what I should be doing. Should he be on a special diet. He's never smoked he drinks in moderation about 8 units a week sometimes none. Should he stop having any alcohol? Should I try alternative medicine as well as the chemotherapy and radiotherapy? 
I feel selfish when he tells me that I don't know how he's feeling. It's true I don't. He's my world. He's in his early 60's and im just 60. We have 3 children and grandchildren. Can he see them? Can we go out? Can we go on holiday? After his treatment if yes how soon after? I have a million questions. The only problem is he doesn't want to bother the consultant. He feels dirty and that everything should be cleaned after him. 
I'm sorry for rambling on. I just feel so lost.

Mrs F

  • Hello Mrs F

    I'm sorry to hear about your husband's diagnosis. It's obviously an incredibly difficult time for you both and understandable that you have any questions about what the future holds. 

    We have a fantastic group of members here on the forum who have been through treatment for throat cancer. I'm going to tag in [@RadioactiveRaz]‍ and [@Anchor1707]‍. I'm sure that they will reply when they're able to. Both these members have written personal blogs about their journey and I know that many other members have found the blogs to be a gold mine of advice and tips. 

    I'd also suggest you have a look at this thread and also this thread and post to introduce yourself on one or both of those. They are the most active threads we have with members who have/have had throat cancer. 

    We do have a team of nurses here at Cancer Research UK and I'd encourage you to give them a call at some point. I know that they will be happy to talk things through with you and offer any information, advice, and support that they can. They're available Monday to Friday (exc. bank holidays) from 9 am to 5 pm on 0808 800 4040. 

    I know that we've many members here who will understand what it's like to care for a loved one with cancer so please stay in touch Mrs F. Whilst it can feel overwhelming, confusing, and sometimes lonely, know that there is a whole community of people here to offer support if you reach out. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi Mrs F 

    so sorry  your hubby's joined the club. 
    I gave a blog detailing my experience with throat cancer mine was tonsils and several lymph nodes. 
    has h p v been  mentioned ? 
    I gave ti to our now my Blog us www.radioactiveraz.wordpress.com. 
    I had 35 radiotherapy sessions and 2chemi theres links to others if May help. 
    come back with any questions in 3 years post treatment 

    hazel x
     

  • Hi sorry about earlier was meeting step grandson for tea.

    yes life does give on after cancer. I would say yes to giving up alcohol as during treatment there is no way he will be able to drink any. As for special diet at the moment I would say letbhimeatbwhat he wants and what he’s can . I lost weight after treatment but I did put 11 lb on in the week s leading uo to treatment which left me in good stead when I was loosing weight. The most I’ve known anyone loose is 4 stone purly because chemo radiation doesn’t take away your ability to eat for a while. I was n g tube fed for 3 weeks during treatment and 3 weeks after..I went to Spain week 8 as we have an apartmentbtheee it was hard I wouldn’t have been able to go in a hotel thatbearly as I had to do my own food. Wee generallynfo abroaf 3 times a year and this year we’ve had 4 holiday season in U.K. .hooe this makes yiu a but more settled life does continue .

    As for alternative I personally would say no truest our n h s they are world leaders.if yiu wantbtomask anything yiu can send me a friend request. Where in the U.K. are yiu ? 

    Please keep off the Internet the info on there isn’t regulated stick to people who have done it Hazsl x 

  • Thank you so much for your post. I live in Manchester and we probably have the best cancer care in the uk. 
    My husband has now been diagnosed with stage 3 0 spread . He had his operation on Tuesday which they only managed to clear his airways. We have another appointment on Tuesday (it can't come soon enough). We also have an apartment in Spain. I am hoping that we can get to at some point just for some normalcy.

     I hope you have fully recovered 

    Mrs F

  • Hi 

    I am West Yorkshire yes that hospital has an excellent reputation you're in good  hands . I was  T2N2NM tumour size t 2 lymph nodes 2 no metastatic spread.tes thank you I am very well have dry mouth issues snd can't eat spicy foods our place is in the mar  menor  Murcia. We do a long  term rental on unit but actually ours but our stuff in it all the time. Not bern since we left last November. Any questions just ask. I was also h p v 16 positive that's a question you need to ask as well 

    Hazel x

  • Mrs F and hi

    I thought I would reach out and a post a link to my blog as well and hope helps with some perspectives during and after treatment.

    In the main, during initial stages of treatment then no real impact but then you do start to feel a little more tired and some of the side effects kick in.
    You are in good hands with the NHS in my view and they will oversee medicines required and will monitor closely.
    Personally, I would not recommend alcolhol during treatment and in recovery but I would encourange you to speak with the support team around diet,medication and things like alcohol as they will monitor weight and medication.
    I have also posted a link to my blog that outlines my personal journey through treatment and recovery and hopefully might give some additional perspective on road ahead

    Happy to help any way I can

    radiotherapythroat.home.blog

    regards
    Ian

  • Hi I'm new to this and just had a question. My dad who is 70 has just been diagnosed with advanced cancer of the base of the tongue which spread to the right lymph node but he has only been recommended radiation therapy. The doctor said he was in 2 minds in recommending chemo because of his age and there's no evidence is actually helps the over 70. I've read up about it and according to the discrimination act of 2012 a doctor can't hold treatment based on your age if you are fit and well which my dad is. Is this true? Can I ask the doctor to give him chemo to improve the treatment ?

    any help is appreciated.

  • Hi is your father having radiotherapy ? If so the chemo isn't a major part of treatment. I was due to have 3 session but only had 2 as I hadn't had side effects but my ears were starting to ring the chemo adds 4% approx towards treatment so if he's hsvjng rafik I woukd sude with dr as they kniw the older we get the tougher treatment is. Hope thus helps. 
    hazel x

  • Yes the doctor said radiotherapy and he was on the fence about chemo because of his age and if it would add much value but when I read about it online they say any age is valuable so I'm a bit confused as to what the right treatment actually is. 

  • Hi has it was explained to me radiotherapy us the main event what  chemo does  to our type of  cancer us make the tumour slightly more responsive to treatment   By slightly the figure i was quoted was 4 % extra. What needs to be balanced is the negative effect t that chemi can cause.  The main one is radiotherapy is brutal as is us adding chemo to the mix can make other side effects the main one being severe.  tinnitus . My oncologist said at least 66% of hus patients do not priced either the full chemo. Chemo has its place in many  cancer treatment s ie lymphoma leukaemia where radiotherapy isn't effective. Throat  cancers resound to radiotherapy. I was always guided by my team of health professionals. Plus has you dad got lymph node spread ? 
    i know  if at least 20 whi have been in touch uch over the past 3 years all treated successfully all without chemo for throat  cancer. I wouldn't say your dad's consultant is with holding chemo rather the fact he's thinking if the possible side effects. With in top of the radiotherapy side effects coujd effects your dads quality of life after wards if that makes sense. If you want to send me a friend request csn try to help further 
    Hazel