Mum has Glioblastoma

So my mum was diagnosed with a glioblastoma 8 weeks ago and is finishing her treatment this week, chemo and radio together! My mum is only 61 and it's only me and my mum I have no brothers or sisters, I have a 19 month old daughter and am also pregnant with my second baby! It's a very stressful time and I can't imagine my life without my mum being there! The consultant told her the treatment could give her 2 months or two years they won't know until she has another scan which isn't until July! Just looking for someone in a similar situation to have a chat with really! People don't really understand unless there in a similar situation! 

  • Hi, sorry to read about your mum. I am in a similar situation my mum got diagnosed just before christmas last year. She had surgery then 8 weeks of treatment. Unfortunately her tumour has progressed and they can't do anymore. It's a terrible disease but it seems to be very individual on how it progresses and at what speed.
    having been through it all I would say just start enjoying your time together, making memories and being there. They re scan a fair bit later after treatment as the radiation takes a while after treatment to work (if that makes sense) it's going to be a tough road ahead and I feel for you with a young child and being pregnant. I too have young children. But keep positive and just live life together whilst you can. Try not to read too much on the internet, it can be a minefield of information which really can't give you any answers. Yes be prepared for what inevitably will come further down the line but just also keep a positive mindset that it won't be soon. 

     

  • I was diagnosed with GBM4 in July 2019. I had an operation and followed the chemo and radiotherapy route. My consultant gave the standard 12 to 15 months scenario, I am still here and never take each day for granted. It was upsetting for my wife and children but you cannot dwell on the negative and focus on the positive. Enjoy every day. Dr Google has a lot to answer for. Everyone is different so a timescale is just a measure that fluctuates. Keep positive. 

     

    John 

  • Thank you so much for your response! I'm glad that I'm not the only one in this difficult situation! I'm sorry to hear about your mum too, its very difficult watching someone you love struggle! After mums treatment finished she felt awful so we haven't been able to do much yet other than cosy up on the sofa (which means more to me than anything). It's a hard reality to face but she beings chemo again this week and come July we will know from the scan how things are looking! We will continue to make the most of whatever time we have!