Hi Jude, it's hard isn't it, I know because I've been doing it for four years since my husband was diagnosed stage 4 lung cancer.  It's the negativity and constant illness that drags you down and it must be extra hard in lockdown.  I was lucky as each day when he wasn't having treatment I had coffee with friends or we went to the cinema and then had a meal just for a break.  So now things are easing off you need to make time for you as well as him.  I stuck the bad moods for months but then retaliated telling him you don't bite the hand that feeds you.  He listened and took that on board.  Family should help you as well, if it was really bad I told my married daughter and had a little cry, then I could carry on again.  So finances, my understanding is that you should discuss this with his McMillan nurse and she will advise, we get DLA and have since the beginning.  If it's granted then its back dated so you get a lump sum from diagnosis.  I write a small blog on here most days, so have a look on my Dor06 and see how I coped.  Good luck, Carol x 

Thanks Carol

yes i'm desperate to get out and see my friends for some rest bite.... and several large gins

I tried looking for your blog yesterday as I spent another afternoon sitting in a hospital car park, but couldn't find it on my mobile so will try on my laptop today. 

He's not as moody today probs as I got a bit shirty with him yesterday as on the drive back he kept telling me how to drive then moaned at my parking then turned his nose up at any food I tried to give him, eventually got a small bowl of porridge in him, it's pretty much all he eats at the moment 

will contact McMillan nurse on Tuesday and hopefully find out what we can claim as we sure do need some financial help 

best 

Jude x

Hi it's not just the people with cancer who have a bad time its the caring relatives as well.as carol says Macmillan should be able to help, even local council should be able to help maybe bit of rates drop,see if you have"carers first"in your area they were a great help to us . the council said we wouldn't get anything and carers sorted it out.   Social services should be able to help seeing if any special equipment is neaded and arrange it all.

We're a bit different to you my wife has Alzheimer's and Parkinson's plus other problems so mood swings can change regularly. I'm on palative care since 2016 and my wife's official carer. Don't have time for mood swings though sometimes its tempting.

Hope you can get sorted soon but I'm afraid some places are really draging there heals,(carers first should give them a push).

Please keep in touch with how things are going not just for us anyone having similar problems it could help.

Best wishes for the future.

Keep safe and keep smiling.

Billy