Refusing life saving treatment

Hello, just looking for some advice really. My aunt has recently been diagnosed with a brain tumour and has been offered an operation as early as next week then potentially radiotherapy. The tumour and/or steroids seem to have affected her sense of rationality and she is often confused or refuses to talk about the next steps saying she's not sure it's worth the bother of treatment as there are no guarantees it will work. We are obviously desperate for her to agree to treatment as the consultant has said there may only be a matter of months left if it isn't removed but she doesn't seem to realise or be able to process how serious it is. She just seems exhausted with it all as she (successfully) underwent chemo and an op last year for lung cancer and now can't take in that the cancer has returned.

I think she probably needs space to think about it but unfortunately time is not on her side. And ultimately the decison is of course hers but my mum is going crazy thinking that her sister is just "giving up". Not being able to visit / hug / have cuppa with her is making it harder too.

It's so frustrating that there is a lifeline but she is reluctant to take it.

Has anyone else been through similar? Any advice most welcome.

thanks in advance x

  • Hi, 

     

    my dad was diagnosed with lung and brain cancer last November, symptoms pointed to a stroke, he was offered a op the radiation to try and prolong his life for a couple of years, we was desperate for him to take it, tears, augment ,begging, nothing worked. He died 8 weeks ago, 

    it's broke our hearts, but looking back, we think he knew he didn't have long in himself, not giving up, just not wanting to go through everything, for a maybe and could of been left worse.

     

    my advise would be , please try and accept her decision even though it's heartbreaking, and use the time instead of talking about treatment plans, to talk relive memories make her laugh, cry together, we in the end as a family, all sat in the home with my dad, doctors, nurses and Carers didn't mention once about COVID and complained about us in the home with him.

     

    love and hugs to yous , it's so difficult, but do it together xxx

  • Hello,

    Having been through cancer myself, I understand how damaging it can be on your mental health. I've literally come to the end of treatment back in Nov. Unless you have been through it, you won't have an understanding (thankfully) just how terrifying it is. The fear and anxiety can get excruciatingly painful and so difficult to handle that it consumes you to the point of taking over any rationality. However, you think you are being rational. Cancer is very much a mental disease as it is a physical disease.

    I don't know if it would help but one of the things that pulled me through the fog was talking to people and gaining their perspective. Now, perspective is VERY different to advice. If you could just plant positive seeds (perspective) by saying  'imagined what life could be like if you went through the treatment and it works.' Kindly challenge your aunt's views of wondering if the treatment is worth the bother.

    Not to get too deep, but think about people who want to die by suicide. Why do they want to? Coz they are terrified and don't want to face the pain/side effects. Cancer is a similar situation.

    Another thing that's helped me is looking at YouTube vids of people who are in a similar position. There's a wonderful women who advocates for women with cancer. She was diagnosed with breast cancer and it's ended up spreading to her lungs and brain. She's an inspirational women. Her name is Nalie Agustin.

    Also, maybe get her a simple gratitude book so she can recognise and list the small things in life that have made her happy each day.

    Hope I've helped. Sorry if I haven't.

     

  • Thank you Crazyfamily. I’m really sorry to hear about your dad. Wonderful that he had you all around him though, it must have been a great comfort to him.

    You’re right - it’s hers not anyone else’s choice to make and we need to listen to her and respect whatever she decides and either way make the most of things rather than wasting time and energy fighting against her decision.
     

  • Yes you have helped - thank you for sharing your experience and touching on how it feels first-hand. My aunt was a member of a local cancer support group (pre-covid, whilst supporting another family member) and I don’t know what has happened with that, so I may suggest reaching out there to get other people's perspectives. She’s quite old school so not sure how she would feel about online resources but the gratitude book is a lovely idea.

    I know this is about her and I’m only really on the sidelines but I want to support her and everyone the best possible way so really value all your replies.

  • Without meaning this in a horrible way, when you go through cancer, everyone says you are not alone. That may be so and you could have a whole army of supportive people around you, but the fight against cancer IS a lonely place. 

    The only other thing you can do for your aunt is practice active listening with her. Explore her feelings through talk so that she can put a voice to her concerns out loud, feel heard and face her feelings. PLEASE look after your mental health too though. 

  • Hi I am sorry about your auntie but respect her wishes.i am only 43 and have brain mets.since October. My useless hospital didn't offer me nothing except radiotherapy which didn't help my right hand which I can't use it.i am so angry with my nhs doctors that I have asked to be transferred to another hospital.

    I was diagnosed with brain mets in October and going to return to work.i am trying to think posititive.

    Denise