Hi Clare

We have quite a number of members on the forum who have dealt with tonsil cancer and shared tips and hints for dealing with things. The two that immediately spring to my mind are [@RadioactiveRaz]‍ and [@Taff123]‍. I know both these members have written blogs about their journey which others have said they have found useful. Hopefully they will pop along to say Hello! as I've tagged them into your reply. 

You can also use the forum search function (magnifying glass in the blue bar at the top of the page) to search for their names and there you'll find a number of threads to have a read through. I'll say pull up a comfy chair and grab a cuppa as there's lots of reading you can do here which I hope will help both you and Gary as he starts his treatment. 

You're also very welcome to call and talk to one of our nurses for advice and support. They are available Monday to Friday 9am to 5pm on 0808 800 4040. 

Best wishes for the appointment on Tuesday. Do let us know how you get on. 

Jenn
Cancer Chat moderator

Thank you Jenn, it was kind of you to reply. I will do as you say and have a good old search. It's all a bit of a rollercoaster of emotions for both of us at the moment. Many thanks again, Clare x

Hi Clare and Gary this is Hazel I am 18 month post radiotherapy for tonsil cancer with several affected lymph nodes welcome to the club that no one wants to join 

for mucus during treatment I was given a nebuliser to use from the hospital along with saline solution to put in it ,when it git really bad I was given carbusistine yiu could ask either yiur de or g p if it would help. 

I have a blog www.radioactiveraz.wordpress.com where I explain what happened to me , just remember some shine may or may nit get we are all different. 

My diagnosis was T2N2NM tumour size 2-4 cms 2 lymph nodes lateen increased  to 3/4 whilst waiting for treatment ,nm I is no metastasis to elsewhere in body .i was also h p v 16+ which is the virus based cancer.

no use lying the treatment can be brutal the recovery can be long but I was riding my bike after 8 weeks .i still have difficulty eating certain things and dry mouth is a problem that is getting slowly better .

Ask any questions

Hazel x

Hazsl again just a nite try and keep off google stick to cancer U.K. sites or Macmillan or any links from blog ,you will scare yourself if yiu search online randomly.

it can be done if I can do it anyone can I was 61 when diagnosed 

Hazel x

Hi how many times did you use nebuliser. My husband has had 30 rounds of rads finished last November for squamous back of throat and neck. He is suffering badly with everything any help or advice would be great. 

Husband diagnosed last ) July 30 rounds of rads finished last November mucus bad, tongue swollen which is affecting his speech no appetite using his feeding tummy tube. We have a nebuliser which he uses any other advice would be fantastic as I'm so worried trying my best to help in this horrendous scary situation. Was wondering what's optinions of cool mist humidifier did it work or not thank you Ann x I forgot he is HPV positive 

Hi 

i was h p v positve as  well I am now 18 month post radiotherapy for tonsil cancer. The journey is a tough one but the end results are good. I used s cool mist humidifier all wat through treatment and recovery mine from amazon. Yes it did help me especially st nighttime. His hubby still on medication I didn’t come off mine totally until 5 month after treatment. I had my n g feeding tube out 3 weeks after so I had no choices it was eat or not   Te tongue is he on ibuprofen for the swelling? Either liquid ibuprofen or via peg. Have you tried the Ensure drinks orally ok not easy but calorie wise can help. Aldi I found a light exercise only walking first to lamp post on road then each day a little further really helped. Have you been given carbusistine to help with the mucus see your dr again this helped me. 

I have s blog with more info snd links to other sites. WWW.radioactiveraz.wordpress.com

snything else messsge Hazel xx

I used the nebuliser up to 6 times a day u can replace the saline with plain boiled water.  The humidifier I used ever night for at least 4 months 

Hazel x

Thank you my husband was admitted to hospital this afternoon he has a chest infection I will reply soon but thanks for replying to mine Ann