Restless, anxious about my husband

I am trying so hard to be strong for him. Tonight he said he thinks he’s “had it” I asked him why and he said everything seems to be gearing up for the end. He felt that the Marie Curie nurse visit last week meant he would go soon. I said I kind of understood his fear but she is there to support him. I suggested he talks to her about this next week when she visits again. 

I sat on the edge of his bed and talked about the holiday we’ve booked for March. He said it’s only 26 days away, so at least it’s given him something to aim for. He’s counting the days  He’s anxious about travelling. There is a hospital with an Oncology unit about 8 miles from where we will be staying. I think it’s best if I call them before we go to check they’ll be able to help him if he got taken ill 

Hes got his sickness under control and that’s helped him a little. He’s not eating much but he has an appointment with the dietician next week. 

My heads still in a whirl,  I’m not sleeping properly  I don’t really know what to do or say  I’m simply being guided by him. I accept what he says and reassure him as best I can. 

Im  going to try to be brave and ask the nurse some questions next week

This is the worst thing to happen to us all but we are trying to make the best of now

Kuiper

  • Hi kuiper.

    Bren doing great keeping improving slowly carer's are just supporting her slightly and she moves herself around to commode or chair and one carer support's her while other washes her down below I usto hold her up while she was washed so I'm redundant now seems strange after all these years .

    I'm being messed about with meds lately both Dr and specialist said to increase my heart tablet I've done it then Dr says to stop the increase because My sodium levels are very low sometimes feel like going round in circles and only had all this hassle since going on those New tablets for my cancer but everyone says it's not them because they increase blood pressure which hasn't happened .. don't worry just a quick rant letting off steam certainly does good now and again 

    Got bren memory foam mattress years ago too hard for her,so bought sir one so could adjust pressure to suit alot better before hospital bed came ,same firm can supply air cushion for chairs firm is nrs I think .

    Bella is getting to be a proper madam got carer's wrapped around her little paw if she asks she gets a good earrub. Or treat .

    Take care.

    Love Billy xxxx

  • Hi Billy

    they should be listening to you. If your blood pressure is too low then the tablet is too strong and the dose needs adjusting. My husbands on a very low dose of chemo. If he ups it even by one tablet as they suggested, his bp spikes high and his temperature goes through the roof.

    I hope someone listens. Your gp should be responsible for your bp management. Things are so mad due to covid no one knows what’s happening away from it.

    Billy for all the good it is I’m sending you the biggest virtual hug ever. The intention is well meant. I also send my love to Bren. 

    Billy yiu can rant to me anytime you want. It’s more than ok

    with love Kuiper

    xxx 

  • Hello, I'm just updating what's happening with my husband. 
     

    He managed to break his ribs a few months ago by insisting he was turning the water to our caravan back on. I'd begged him not to do it. There were plenty of people on site that would have done this happily. He lay on his back under the caravan to turn the mains back on and heard a loud crack.Later on he was in severe pain but wouldn't got to a & e at the local hospital up there.  So when we got back home he had a scan. He was simply told he'd got broken ribs and he'd got cancer in them
     

    He still getting pain in them all these months later. The Macmillan nurse has been in this week and he asked her if she knew which ribs or his many he broke. He explained the trouble he's having. She called him back. He's broken three on one side and one on the other. Unfortunately he has lesions on them. He's due another scan on the 19th, results on the 3rd, Macmillan will call him the day after.  

     

    He's had a hospital bed delivered. That upset me because another wave of reality hits you with each thing. I didn't show it though. I went to the loo and cried quietly. 
     

    His mental state isn't great but we do silly stuff like ruin lovely songs by changing the lyrics and that lightens things up a bit. I try to find something funny to share or talk about the kids etc. At the bottom of his bed there is a tall glass cabinet, so I've put photos facing him, pictures the grandkids have done etc. He loves that. 
     

    We have great grandchild number 4 due in January and that's given him something to look forward to. It's another boy. Seven more they'll have their own football team! Not sure why the parents weren't amused by my comment! No they knew I was kidding. 
     

    please take care all

    Love Kuiper
     



     

     
     

     

  • Hi kuiper.

    I nearly lost my sense of humour ️,a minute ago,I wrote a fairly long message to you just about finished,and sneezed, touched screen and went on another page when I got back all the message had gone.    Grrr

    Anyway second try.

    Glad hubby is still smiling at things you both are doing love the idea of the football team, and the pictures, hope he's sleeping better now and you of course, glad you've got someone coming in to check on things its always nice to have some reassurance if you're not sure about something,

    I'm still not getting anywhere with these new meds, nobody wants to commit there wrong in they're causing all my problems but at least my count is going down,had My bone scan and CT talking to oncologist 30th see if anything sorted,bren got a walking frame only uses it when carer's here to move to commode and back but it really chears her up when she does it 

    Don't forget anytime you need to talk.

    Take care of yourself.

    Love Billy xxx