Restless, anxious about my husband

I am trying so hard to be strong for him. Tonight he said he thinks he’s “had it” I asked him why and he said everything seems to be gearing up for the end. He felt that the Marie Curie nurse visit last week meant he would go soon. I said I kind of understood his fear but she is there to support him. I suggested he talks to her about this next week when she visits again. 

I sat on the edge of his bed and talked about the holiday we’ve booked for March. He said it’s only 26 days away, so at least it’s given him something to aim for. He’s counting the days  He’s anxious about travelling. There is a hospital with an Oncology unit about 8 miles from where we will be staying. I think it’s best if I call them before we go to check they’ll be able to help him if he got taken ill 

Hes got his sickness under control and that’s helped him a little. He’s not eating much but he has an appointment with the dietician next week. 

My heads still in a whirl,  I’m not sleeping properly  I don’t really know what to do or say  I’m simply being guided by him. I accept what he says and reassure him as best I can. 

Im  going to try to be brave and ask the nurse some questions next week

This is the worst thing to happen to us all but we are trying to make the best of now

Kuiper

  • He’s home with antibiotics that look like pessaries. I’m so relieved. 

    Hes lost a bit of weight but to come back from pneumonia and sepsis in four days is nothing short of miraculous. Small wonder he lost a bit of weight. He had to have potassium drinks as his potassium was low. He said the food was disgusting and unpalatable. He did try to eat it

    I was taken aback that he’d had to sign to say no resuscitation because they have to prioritise healthier patients with longer lives. I understand it but it’s not nice. 

    Thanks Ronnie and Billy for your kindness xx

  • Hi kuiper, glad he's home and feeling alot better, hope you're getting some good tasting food down him now. 

    Some friends of mine have been told same thing being on palliative or terminal care if we get Ill we will just be left so fitter people can have better chance of survival and longer life , don't like the idea but hospitals aren't big enough for everyone.

    Shame you can't plan another holiday to get away from it all. Hopefully when this virus has gone you can sort something out. Keep fighting...... Billy 

  • We will have to see how he is at that point. I’ve thrown the idea out into the open. I’ll be guided by him xxx

  • Hi kuiper, hope you don't mind me asking, hoping things are still OK, and hubby is now eating well. 

    Thinking of you both. All the best for the future. Billy.... 

  • Yes he’s doing really well. I really thought he wouldn’t come back out and survive. He’s slmost finished his antibiotics. His appetite is better and I wonder if it’s because he’s not taking chemo?

    we had a scare with me last night. Paramedics had to come in. It emerged I’d got a severe chronic asthma/Bronchiectasis infection. I thought I’d got Coronavirus. I was scared, not for me but for him. 

    Anyway id got a rescue pack in the cupboard of Doxycycline antibiotics and prednisone steroids. I was advised to take them and rest. I felt a fool but it was necessary to be checked out for the sake of my husband

    Anyway how are things with you and your wife? 

     

  • Hi kuiper, 

    Were both plodding on as best we can I'm still doing weekly shop, i go early Wednesday morning not many about. Just normal shopping not going mad like some.

    Glad your OK i bet you did panic. Take care of yourself remember. Shame no going out weather man reckons lovely weekend coming up. 

    Both of you keep positive and keep fighting. Best wishes for the future hope things keep going well...... Billy 

  • Good news about your husband. I am sure that improved appetite is because his chemo has stopped. My husband last had chemo on 21 February and he is eating really well and putting on weight. We don't know when the tumour will grow again but for the moment life is less stressful.

     

    Scary for you to feel ill yourself when you are caring for your husband. I hope you feel better soon.

     

    Listening to Radio 4 this morning it seems most elderly and sick people are being asked to sign no resuscitation agreements.  We are both over 70 and of course my husband is a cancer patient so not good if he goes downhill. Certainly not the time to go to hospital.

    We only leave the house to walk the dog and our kids get food shopping for us. How are you managing? Have you got outside space to enjoy the sunshine?

     

    Good luck to us all.

     

    Ronnie

  • Hi Billygoatt and Ronnie 46

    thanks for replying to my post. Me nor my husband are allowed anywhere. His Oncologist weeks ago advised we start to isolate away from others. That’s had to restart because of us both having been to the hospital with the ambulance when he was taken ill 

    we both had letters individually off the government saying that we need to stay in for twelve weeks. Due to being extremely vulnerable. Strangely my parents haven’t had letters and mom has blood cancer and a whole lot of other stuff wrong and dad has Alzheimer’s 

    We do have a nice back garden. So if it’s warm like they’re saying on Sunday we can sit out for a while  

    Ronnie you’re so right about the difference in our men not taking chemo. It’s so nice to see him eat and have an appetite again. They told him he won’t be allowed back on chemo for twelve weeks at least or until this wretched virus subsides. The risks are too great

    Please stay safe and once again it is so lovely to hear from you 

    Kuiper

     

  • Hi kuiper 

    Thought I'd ask how you and your husband are doing, i know it gets boring not going anywhere so good job weather is good so gardening or just lounging about careful of getting to tanned. Hope things are still going well. Best wishes for the future. 

    Billy 

  • Hi Billy 

    i hope all is well with you and your wife. Nice to hear you’re pottering about in the garden. Thank goodness for this lovely weather 

    Things are not great right now. He’s been ill with these temperature spikes. I’ve two fans on him, giving him paracetamol which do work. His vomiting is out of control where food is concerned but he can drink water. He complains it tastes sickly sweet but it doesn’t as it’s out of the tap! 

    I called the doctor yesterday and she was brilliant. She’s prescribed more antibiotics and a different anti sickness tablet. She spoke to him for ages. Now considering he’d spoken to a locum on the phone only a few days before who said phone 111 or call an ambulance (seriously!) he wouldn’t prescribe or help my husband in any way. We’ve been told to avoid hospital. So hence the fans 

    Our daughter went to collect his prescription and the chemist had shut early. She’s going first thing this morning. I got up at 6.30 gave him half a slice of toast and a couple of ginger biscuits. He had a drink of water and fell back to sleep. I’m praying this will stay down as his body has had no nutrients for the last three days

    Im resting now as this chest infection has really impacted on me. Fatigue is the worst issue. It’s like I’ve been kicked all over  

    Please have a lovely day and thank you for getting in touch 

    love Kuiper