Restless, anxious about my husband

I am trying so hard to be strong for him. Tonight he said he thinks he’s “had it” I asked him why and he said everything seems to be gearing up for the end. He felt that the Marie Curie nurse visit last week meant he would go soon. I said I kind of understood his fear but she is there to support him. I suggested he talks to her about this next week when she visits again. 

I sat on the edge of his bed and talked about the holiday we’ve booked for March. He said it’s only 26 days away, so at least it’s given him something to aim for. He’s counting the days  He’s anxious about travelling. There is a hospital with an Oncology unit about 8 miles from where we will be staying. I think it’s best if I call them before we go to check they’ll be able to help him if he got taken ill 

Hes got his sickness under control and that’s helped him a little. He’s not eating much but he has an appointment with the dietician next week. 

My heads still in a whirl,  I’m not sleeping properly  I don’t really know what to do or say  I’m simply being guided by him. I accept what he says and reassure him as best I can. 

Im  going to try to be brave and ask the nurse some questions next week

This is the worst thing to happen to us all but we are trying to make the best of now

Kuiper

  • Hi kuiper really glad your holiday was good, that's want you both want. Hope all the photos are OK probably are digital nowadays.. Get some framed as reminder of good times.. And get other things planned,

    Keep positive. 

    Love..... Billy xxx 

  • Hello there

     

    i am so glad you enjoyed your holiday. What lovely memories you have made.

     

    Do you and your husband feel that the radiotherapy has helped? What is the plan with the chemotherapy tablets? Does he tolerate them - my husband couldn't manage them.

    We are all isolated now with this virus fear and none of us wants to be near hospitals. Good luck for the next few days and weeks, we all need it.

     

    Hugs from

    Ronnie

  • He woke up yesterday morning saying he felt sick. He vomited violently for ten minutes. He came back in almost grey looking with slight blueness around his mouth, shaking from head to foot. He got back into bed and kept saying he couldn’t get warm. I asked him something but his reply was incoherent. I got the thermometer popped it into his ear, 39 degs. Offered him paracetamol with a cool drink he said he couldn’t swallow them. He sipped the drink. I got a cold compress and put it on his forehead. 15 mins later checked temperature again, 39.3 degs.

    I got his red card. I phoned the number. Hospital switchboard took ten minutes to answer and transferred my call to oncology. They advised I hung up and phoned 999. The ambulance came quickly by which time he couldn’t answer questions. He was very confused and I was scared but acted calmly. 

    He got taken to hospital with me because he was so confused. Long story short he has pneumonia. I was sent home as he had to be test for Covid-19. Results in 2-3 days  I have asthma/Bronchiectasis lung condition  

    Hes on intravenous antibiotics and fluids. I can’t visit  When I left him at the hospital, as I walked away I started to cry  he didn’t see  I got outside and sobbed  

    I feel so useless but I know he’s in the best place  

     

     

     

  • Hi kuiper, so sorry, your husbands in Hospital but like you say it's the best place to get him sorted, bet you feel lost not being able to visit. We're all praying and hoping for a safe recovery so he's soon home with you, hope you can visit soon.

    If you kneed to talk you know thares plenty on here will listen, your both in our thoughts and prayers.

    Billy 

  • Oh dear that is so hard for you all. Terribly worrying but even worse that you can't see him.  I am very sorry for what you and your family are going through and really hope the antibiotics work quickly.

     

    Best wishes

    Ronnie

  • So it emerged today he has Sepsis. He also has a bug in his blood and they don’t know what it is yet. They don’t know where it has come from. He’s on a fusion of two strong antibiotics. He’s to go for a scan and a chest X-ray at some point. 

    He is in a side room away from everyone. I am powerless but thank God for mobile phones 

  • Hi kuiper your husband is in the right place. Remember to keep looking after yourself what happens if you get ill, as you say what would we do without mobile phone. Best wishes to you both. 

    Billy 

  • Thank you all for the kind posts

    He’s tested negative for COVID-19. He’s cried on the phone to me with relief. He said he thought he only had a few days left and that we’d never have seen each other again. 

    Hes over the moon. As long as he responds to this antibiotic treatment he could be home in a few days

     

  • What a relief. He will be so much happier at home. Sending best wishes and hoping the antibiotics work and he will be home very soon. 

    Ronnie

  • Hi kuiper, just a quick high. Hope things are improving with your hubby, all praying and wishing well for you both. Best wishes.... Billy xxx