Essential thrombocythemia

Hello everyone, 

I hope you are doing fine. 

My mum is diagnosed with ET about 3 months ago and she has been using hydroxyurea tablets, thromboreductin and aspirin. She has been doing fine and her platelets count has been normal until a few days ago. 

Suddenly, she started having nose bleed almost everyday. 

I would be very grateful if know anything about this and can advise me. 

Thank you everyone! 

Muz

  • Hi HMD,

    I'm sorry to read about the difficulties your mum has been having. Unfortunately I'm not able to advise on this - it would best to discuss this with your mum's doctor if you can.

    If you'd like to talk anything through with our nurses, you can reach them on 0808 800 4040 - Monday-Friday, 9-5.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi muz,and hi to all, my name is John I have just joined I was having nose bleeds every day my doctor has given me a spray called Avamys nasal spray and it works .at least something does had ET for 2 years now ,still feeling horrible inside my arms hands feet and legs ache all the time. That's enough about me I could go on all day look forward to chatting to you all thanks john

  • Hi John,

    Thank you very much for your reply and for sharing your experience with us. 

     

    I have just found out that my mother's platelets has been high, so let's see what the doctor say. I will ask about the spay you mentioned as well. Thank you and I hope a little excercise and occasional pain killer will help you too. 

     

    Thankss

  • Thank you for your reply. The test yesterday showed her platelets high so we are going to see the doctor and see what he says. 

     

    Thank you.