Hi,
My husband was diagnosed with oesophageal cancer T3, N3, M1 - it is at the junction of oesophagus/stomach and has spread. Since diagnosis, we have been having HCX chemo, 6 cycles. I wanted to ask [@davek] a question (apologies I can't see a way of sending a pm via this site). I read your bio with interest as your diagnosis seemed the same as ours, we were also told surgery was not an option due to spread. I wanted to know :
1) How many cycles of chemo did you have in total, and was it EOX the whole time?
2) After you had your scan and were told that both primary and secondary had reduced in size, were you told to have more chemo but you decided not to, or did the doctors tell you to stop and just have scans every 6 months? We had a scan after cycle 4 and were told that both the primary and other tumors had reduced in size, we are about to do cycle 6 and I am hoping for good news after that but understand this is rare, your story gives me some hope.
3) Were you offered / would you recommend clinical trials with immunotherapy? We haven't been offered anything but I found one through searching, will discuss with oncologist but wanted to ask here too.
Any help or advice is much appreciated, thank you