40yo husband terminal cancer two young kids feeling truly ov

Hello to anyone who’s listening. 

I’m Liz and in April last year, when our second child was just 4 months old, my fit, slim, healthy husband was diagnosed with terminal cancer. It’s a rare form of pancreatic cancer called pancreatic neuroendocrine carcinoma. It’s stage 4 and aggressive. 

Hes had 1st line chemo and this Monday he started on second line chemo. After that there’s nothing else they can do. Surgery has never been an option. 

Hes currently laid up in bed as the chemo has wiped him out and I’m trying to work from home but my levels of stress and anxiety are so high I find it difficult to function, yet I know I must stay as strong as possible for myself, my husband and two young children. We are lucky that we have lots of support available though with my and Will’s parents, friends and other relatives and in the meantime the only thing I know how to do is to continue normally. We are also both seeing a therapist individually to help us. 

Anyway I think everything has finally hit me this past few weeks as he’s deteriorating in terms of now being in significant pain and he can no longer lift or carry our children (neither can walk yet). 

I’m finally reaching out as I’m feeling so overwhelmed at times that I feel like I’m losing my mind. I’m also struggling with insomnia and paranoia (I keep thinking that Will’s parents think I’m no good/selfish/whatever - I have an anxiety disorder by the way and am on the maximum dose of antidepressants. I’m terrified of wasting the time I have left with him due to focussing on such stupid thoughts, but I can’t get them out of my mind! I’m also terrified that once he’s gone I’ll punish myself by self-harming or end up being sectioned and losing our kids. 

I also feel so utterly terrible for him. When we met he said he didn’t just want kids, but that he looked forward to being a grandfather too. This will never be. He won’t even see his kids start school. This tears me apart even though I’m the one who’ll keep on living. We thought we’d spend the rest of our lives together and we won’t. I can’t get my head around this at all but at the same time can’t stop thinking about it. Not sure how I’m going to survive this to be honest. 

Many kind words/peer support/similar experiences greatly appreciated, and if I can in return support any of you guys it would be an honour. 

Thank you x

Parents
  • Hi, as you know I am going thru this too and I do feel your pain. My two girls are 8 and 12 and this week I had to tell them the treatment hasn't worked and the Dr's say we only have a few weeks left with him, how do we survive this, I am a mess, stressed to the max and can't eat or sleep, he is 44 and now there is no chance he will make 45. How do we get ourselves,  our children and our darling husband's thru this without a breakdown. Can't see any light at the end of the tunnel now only dark, I have sent you a friend request so we can talk more together if u want to, I only feel understood by others suffering it too st the moment. Anyone else in similar situation please send friend request so we can support each other. We are hoping to bring him home from hospital today and then be under home care from the hospice, he is still on immense pain and can hardly walk, certainly can't do the things he loves like mountain biking with his daughter. One thing I have found is stop looking at Facebook.  it does u no good to see other people obliviously posting stuff about their frivolous lives when ours are ending,  sending hugs to anyone out there suffering too

  • Oh my goodness, what an ordeal you are all dealing with right now. I’ve accepted your friend request but not sure what to do now - do we just message privately? And what is your name?

    im so sorry the treatment hasn’t worked. It’s utter *** isn’t it? How are your children reacting to the news? And how are you keeping strong in the face of such adversity? And how is your husband? Is he frightened, angry etc? You will get through this though - you and your girls will get through this. I promise. You are strong. I know how you feel completely. Some weeks I think I can handle it, in fact one of my biggest therapies is vigorous exercise. For those brief moments when I’m running or working out I feel invincible. It doesn’t last though of course and then I feel so truly overwhelmed, like I’m losing my mind. I worry the kids will get taken away from me and I’ll be hospitalised. But we have no choice. We have to do this for our husbands and kids. I fear for the kids the most - I want them to be as nurtured and protected despite all this as possible. 

    Did you and your husband receive good care in the hospital? Are you and the girls getting support? I for one don’t think I get any emotional support, other than from friends. And are the hospice good? Will you try and keep him at home?

    we had an awful week 2 weeks ago. Will had an infection so had to stay in hospital, came home utterly depressed as he hates hospitals, saw his oncologist looking for some hope regarding alternative treatments- we were even willing to go abroad if Will was well enough, but it appears there’s nothing and reading between the lines we should focus on spending more quality time as a family. We then went to visit a natural burial site. I completely lost it at that point and then later that day my husband was in floods of tears - he is so frightened. The kids don’t know much yet other than that Will has medicine, has a poorly back and sees the doctor regularly. It breaks my heart that Elliott, at 14 months old, won’t even remember him. 

    Mon Tuesday this week we have his latest scan results. Yay!! Another likely “I’m so sorry” meeting. 

    You take care of everyone (especially yourself) as best you can. Think positive strong thoughts. I know this doesn’t always work but try to replace “I can’t do this” with “I can do this” or “I am willing”. 

    Love to you all xxx

Reply
  • Oh my goodness, what an ordeal you are all dealing with right now. I’ve accepted your friend request but not sure what to do now - do we just message privately? And what is your name?

    im so sorry the treatment hasn’t worked. It’s utter *** isn’t it? How are your children reacting to the news? And how are you keeping strong in the face of such adversity? And how is your husband? Is he frightened, angry etc? You will get through this though - you and your girls will get through this. I promise. You are strong. I know how you feel completely. Some weeks I think I can handle it, in fact one of my biggest therapies is vigorous exercise. For those brief moments when I’m running or working out I feel invincible. It doesn’t last though of course and then I feel so truly overwhelmed, like I’m losing my mind. I worry the kids will get taken away from me and I’ll be hospitalised. But we have no choice. We have to do this for our husbands and kids. I fear for the kids the most - I want them to be as nurtured and protected despite all this as possible. 

    Did you and your husband receive good care in the hospital? Are you and the girls getting support? I for one don’t think I get any emotional support, other than from friends. And are the hospice good? Will you try and keep him at home?

    we had an awful week 2 weeks ago. Will had an infection so had to stay in hospital, came home utterly depressed as he hates hospitals, saw his oncologist looking for some hope regarding alternative treatments- we were even willing to go abroad if Will was well enough, but it appears there’s nothing and reading between the lines we should focus on spending more quality time as a family. We then went to visit a natural burial site. I completely lost it at that point and then later that day my husband was in floods of tears - he is so frightened. The kids don’t know much yet other than that Will has medicine, has a poorly back and sees the doctor regularly. It breaks my heart that Elliott, at 14 months old, won’t even remember him. 

    Mon Tuesday this week we have his latest scan results. Yay!! Another likely “I’m so sorry” meeting. 

    You take care of everyone (especially yourself) as best you can. Think positive strong thoughts. I know this doesn’t always work but try to replace “I can’t do this” with “I can do this” or “I am willing”. 

    Love to you all xxx

Children