40yo husband terminal cancer two young kids feeling truly ov

Hello to anyone who’s listening. 

I’m Liz and in April last year, when our second child was just 4 months old, my fit, slim, healthy husband was diagnosed with terminal cancer. It’s a rare form of pancreatic cancer called pancreatic neuroendocrine carcinoma. It’s stage 4 and aggressive. 

Hes had 1st line chemo and this Monday he started on second line chemo. After that there’s nothing else they can do. Surgery has never been an option. 

Hes currently laid up in bed as the chemo has wiped him out and I’m trying to work from home but my levels of stress and anxiety are so high I find it difficult to function, yet I know I must stay as strong as possible for myself, my husband and two young children. We are lucky that we have lots of support available though with my and Will’s parents, friends and other relatives and in the meantime the only thing I know how to do is to continue normally. We are also both seeing a therapist individually to help us. 

Anyway I think everything has finally hit me this past few weeks as he’s deteriorating in terms of now being in significant pain and he can no longer lift or carry our children (neither can walk yet). 

I’m finally reaching out as I’m feeling so overwhelmed at times that I feel like I’m losing my mind. I’m also struggling with insomnia and paranoia (I keep thinking that Will’s parents think I’m no good/selfish/whatever - I have an anxiety disorder by the way and am on the maximum dose of antidepressants. I’m terrified of wasting the time I have left with him due to focussing on such stupid thoughts, but I can’t get them out of my mind! I’m also terrified that once he’s gone I’ll punish myself by self-harming or end up being sectioned and losing our kids. 

I also feel so utterly terrible for him. When we met he said he didn’t just want kids, but that he looked forward to being a grandfather too. This will never be. He won’t even see his kids start school. This tears me apart even though I’m the one who’ll keep on living. We thought we’d spend the rest of our lives together and we won’t. I can’t get my head around this at all but at the same time can’t stop thinking about it. Not sure how I’m going to survive this to be honest. 

Many kind words/peer support/similar experiences greatly appreciated, and if I can in return support any of you guys it would be an honour. 

Thank you x

Parents
  • Hello

    My husband also aged 40 has been diagnosed with the same cancer just before Christmas. We have 3 young children. Surgery is not an option for him either. Just started chemo. What type is your husband getting? 

    I am feeling overwhelmed and anxious about what the future is going to bring too.

    Sending you big hugs. 

  • Hi there, thank you for your response and forgive me for being slow - I am so busy at the moment trying to manage young children, my job, keeping sane and of course being there for my husband!

    What? Your husband has the same cancer? And how old are your children? How are you coping?

    Will has had two lots of chemo: His first was cisplatin with etoposide, which he managed well and kept on working (school teacher). The chemo didn’t shrink anything but kept things stable. That finished in August and he started his new treatment of irinotecan 2 weeks ago. It’s been made clear to us though that after this drug, there’s nothing else. Between chemo treatments his cancer grew quickly and his pain became unmanageable so he started on morphine, which he continues to take. He cannot work now due to pain and tiredness and struggles to pick up the kids. It’s heartbreaking as I keep trying to figure out why this is happening. He is such a kind, gentle and loving man. 

    Big hugs to you too. Keep in tough and I’ll always respond - even if it takes a while x

  • Theres more chrmo drugs for pancreatic cancer floxi something and gebapentin or sonething like that plus 2 others surely they can offer your hubby more 

  • Was lovely to get your message. You are doing amazingly well keeping everything together. It's hard. I haven't been at work since my husband's diagnosis. His tumour is v large and he is on a lot of medication for pain nausea etc. He has been off too since the week before he was diagnosed as he was unable to eat or sleep. Things improved now he is on medication.  He was fit and healthy until 6 weeks before his diagnosis. 

    The kids are all at primary school and we are all receiving help to deal with the diagnosis from a charity. Are you getting any support?

    Just started EP too. Going ok so far but won't know til after 3 cycles and a CT if it is making any difference. They plan to do 6 cycles. 

    Sending you hugs and positive thoughts. Keep me updated. X 

Reply
  • Was lovely to get your message. You are doing amazingly well keeping everything together. It's hard. I haven't been at work since my husband's diagnosis. His tumour is v large and he is on a lot of medication for pain nausea etc. He has been off too since the week before he was diagnosed as he was unable to eat or sleep. Things improved now he is on medication.  He was fit and healthy until 6 weeks before his diagnosis. 

    The kids are all at primary school and we are all receiving help to deal with the diagnosis from a charity. Are you getting any support?

    Just started EP too. Going ok so far but won't know til after 3 cycles and a CT if it is making any difference. They plan to do 6 cycles. 

    Sending you hugs and positive thoughts. Keep me updated. X 

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