Mum with colon cancer

Hello Guys. My mum was diagnosed with colon cancer the 13th August last year. Had a resection via keyhole surgery to remove the substantial mass which was a success. Removed 19 lymph nodes and found 2 which were cancerous. Anyhow mum is 70 and lives alone. I live 138 miles away. Mum started chemotherapy capecitabine and oxoplatin via transfusion every 3 weeks. Anyhow I work full time but I make sure I'm with mum for her infusion and stay with her for a week after. Work has been really good and understanding. Mum has family in the same town and they dont seem to get it that I work, I travel down and they dont offer to sit with her or nothing. I feel like I have nobody to talk too. Since 2014 my life has evolved around cancer. 2014 my partners dad was diagnosed with bladder cancer and we spent 3 months in france. 2015 my 3 year old nephew was diagnosed with leukaemia and 10 days after that my sister past away suddenly and now mums diagnosis. Sorry to ramble on but I guess it's good to talk.... 

  • Hi jstar83,

    It's so nice to hear how supportive your being to your mum despite the long distance. 

    I know it might feel like you're alone, but you're not and you'll have plenty of people to talk to on the forum. I hope it helps in some way. If you're comfortable talking to your mum's family you could explain to them that you can't do it all yourself and you need help. It may be that to them it looks like you're handling things fine, but in reality that's not entirely true. If you need more information regarding support there's some information here and your mum's medical team might know other organisations in the local area, so you could ask them the next time you come to an appointment. The forum is always there for you and we also have a team of nurses available if you need to talk to anyone. You can call for free on 0808 800 4040 and their lines are open from Monday to Friday, 9am to 5pm.

    All the best to you,

    Moderator Anastasia

     

  • Thankyou for replying. I've tried with the family. Her sister lives a stones throw away as in like 200 yards and comes round once in a blue moon. It's just so hard. My anxiety is through the roof. I just feel so alone so god knows how my mum feels. My partner is also poorly so I've got the anxiety around that. I just put on a smile where in side I'm crying all the time. Folk at work as how mums doing and saying I'm doing great being there for her etc and really they're strangers and my family and close friends are not asking how I am. I will travel back monday to start nights on Monday through to Thursday and try and work some hours on top to try and get the hours I owe down and then I'm back with mum on the 23rd for her final infusion. I'm exhausted. Before I left on the 2nd to be here I broke down to my partner on new years day. I worked the early shift, came home, went shopping, put washing out on the clothes maid, picked dog mess up in garden, cooked tea, put bins out, had to go out again to run some more errands, got back, washed up, tidied up and between all that my partner was also asking for cups of coffee etc. I sat on the bed and just broke down as I felt so low and alone and taken for granted and I got "you're going through alot" I wanted to scream and say that I needed some help. 

    All I seem to do is care for mum when shes on chemo which I'm not moaning about as I love spending time with her, driving up and down the motorway, working, sleeping, working, sleeping, cooking, cleaning, coffee maker, caring for mum..  it's just so hard.. xx

  • It's a shame that her family don't seem to want to help more and that you have to do all this on your own, but you can always reach out to some of the organisations mentioned in the link in my post above, like the Carers Trust. If it feels a bit too overwhelming Anxiety UK has some good tips to help you cope as well and, however small, it's important to take some time out for yourself. It could make all the difference.

    Moderator Anastasia

  • Thankyou for your reply. I will look into it. I travel back and return to work monday and back again on the 24th for next infusion which is her final :) xx