My wife has melanoma, any advice?

8 years ago my wife had a mole on her foot.  After being misdiagnosed by the GP (3 times) she was eventually referred to dermatologist........it turned out to be Melanoma. Surgery followed and a chunk of her foot was removed along with lymph nodes in her groin.  My wife endured wearing horrid compression tights for 3 years and in 2016 she was give the all clear. 

Fast forward to November 2019 and she has now a lump the size of a golf ball under her skin on the side of her knee....it is Melanoma, which took us by great surprise.  It took 5 weeks to diagnose and we are awating results from head MRI and torso CT Scan.  We hope to discuss a treatment plan on 2nd December...over 7 weeks from initial GP visit. We don't know yet if she will require immunotherapy/chemotherapy after surgery.  Does anyone else have experience with large Melanoma growths under the skin? We are both so worried that this is incurable.

  • Hi,

    I'm so sorry your wife is on this roller coaster again. What stage was she originally diagnosed at? Have they said whether the lump is a sub cutaneous met or a lymph node? Have they given her a stage now? My guess is that she will be Stage 3 which means that they may suggest removal of the lump and then a course of immunotherapy or targeted therapy (targeted is only offered if she is Braf positive). If surgery isn't suggested she will go straight on immuno/targeted. 

    My experience is of having a large growth appear in my groin 13 years after being diagnosed Stage 1. Melanoma was found in the lymph node in my groin and in a pelvic node so I was diagnosed Stage 3. After a full node clearance I have been on regular checks. That was 10 years ago - I've had no drug treatment as it wasn't available for Stage 3 until last year. It's having great results. So please don't despair as things have moved on since your wife was first diagnosed. I will send you a friend request. If you accept it I can then send you a private message with more details. 

    Stay positive, good luck and please let us know how you both get on at the appointment next week.

    Angie

  • Hi Angie,

    Thanks for your encouraging response.  I will pm you.