Trying to come to terms with husband's diagnosis. Incurable. Chemo imminent. Coping with food and diet ok though its not good at times, and hard watching him struggle when he otherwise seems so fit. Hard all round. Struggling a bit.
Hi jayemcee High just noticed this string, well done looking after husband, I'm uncurable as well not same as your hubby I've prostate gone to lymph nodes, spine, ribs, pelvis and a lung, i was diagnosed Feb 2016 i call it my uninvited guest, if i can help in any way please let me know.... Billy
I’m sorry to hear about your husbands diagnosis. I can relate to his situation as I was very recently given a similar diagnosis. I went into hospital with what was suspected to be a gall-bladder infection however it was discovered that my symptoms related to secondary tumours in my liver. It all happened in around 11 hours, and I remember thinking the morning after, in the hospital bed, when am I going to wake up from this nightmare.
This led to further investigations to try and find the primary tumour, which was subsequently (about 10 days later) found to be at the gastroscopy-eosophageal junction (plus two stomach ulcers and a hiatus hernia to boot!!)
I am currently 10 days in to my third cycle of chemo. The chemo treatment includes anti-nausea and anti-sickness meds, and these seem to work well for me. I do have an underlying nausea but I find eating fresh fruit (peeled and cut into slices) several times a day helps. I am fortunate that my appetite has not been affected so far, so have been eating ok.
Even now, 9 or 10 weeks on, it still feels unreal. The conversations that I’m having are conversations I never expected to have to be having, be that with medical professionals, family, friends or colleagues!
I hope you and your husband are finding support and information to help you both. I go through stages of reading/researching, trying to understand how I can give myself the best chance of doing well. It can be exhausting as there is so much out there. On Friday just gone I discovered a book “Cancer is my teacher” by Lucy O’Donnell. It’s a fairly compact book full of what I found to be very useful information about what happens when one gets a diagnosis like this and starts treatment. The author was diagnosed with incurable breast cancer. I pretty much read the book in one sitting and I wish I had found it earlier. (though I skipped the two chapters on surgery and radiotherapy as these are not part of my treatment plan).
There is lot a of support and information available here and in the Macmillan site. If there is anything I can do to help in terms of what I have learned from my own experiences, please just ask.
