Thank you for kind words. I'm sorry to hear you lost your husband, I feel I have been grieving for months now. The disease has progressed as in he was given a time of 2-3 months in November 20. He is at home and doing ok, unable to get out and about but we are taking it a day at a time and seeing family as much as we can. 
take care.

My Mum is in hospital today (Whipple Surgery) she was diagnosed with Ampullary Cancer in mid-February 2021 after turning yellow and complaining about stomach pain / dark urine. She’s been ill for some time now with stomach pain and fatigue, the doctors started giving her B12 Injections in 2019, and she’s also had polys in and around the bile duct. We have been told the tumour is approximately 5-6mm and hasn’t spread to the other organs. They will be taking the lymph nodes out during surgery to check for cancer cells. Mum is 71 and relatively fit, she’s been coping very well and didn’t want to talk much about the Whipple Surgery, I on the other hand have been researching since she was diagnosed and it’s been absolutely terrifying. It’s so refreshing to hear your story Harpy61. I’m personally finding this experience emotionally painful! So many things can go wrong and even though I’m 100% an optimist it’s difficult to comprehend this surgery in detail.       

Hello

I hope you don't mind but I have sent you a friend request.

Thankyou 

Hello DGDigital. 

I'm so sorry to bother you but could I message you?

I sent you a friend request a few weeks ago. 

Thankyou 

Hey Fallmare, 

I've now accepted your friend request & replied to another one of your posts. :)

Hello, 

It has been really useful to read the comments on this thread. 

On Wednesday I had an Endoscopy and they found a tumour around the Ampullary. I am having a CT scan on Monday morning so I am pleased that they have rushed this through. Of course I have no idea what the result is going to be but I am obviously a little apprehensive. They have pushed it to a panel that are going to look at in on Monday afternoon. 

The only symptoms I have at this stage is constantly feeling fatigued, abdominal discomfort and my toilet visits have gone from once a day to 4/5 times a day. I go most days now with feeling sick at some point and this puts me off eating, but I have had no weight loss, in fact ive been putting it on with my stomach increasing in size. I dont overley eat and never have done, and mainly just one meal in the eveing and nothing much in the day. 

Its not making much sence to me if im honest.

Kindest regards

Ian  

Hey, Ian,

Thanks for sharing a piece of your heart & journey with us all. It's one heck of a roller-coaster-ride, eh?! 

I can relate to you symptoms, I'd sleep the clock round on a day off. I couldn't eat either due to nausea, & weight loss was the result. I also experienced bloating, so perhaps that's how it is for you too. 

I had three different diagonosis: first one was pancreatic cancer, second it was duodenal cancer & final one was, ampullary adenocarcinoma. 

I asked if that was their final answer, or if they wanted to phone a friend. (fun) ;) 

To be fair, I'll take the third & final one over the first one. 

I wish you well & sending you my warmest wishes. 

If you do happen to reply I'll get an email notification, though you don't have to do anything. 

We're here if you need us for support. 

DG :) 

 

Hi there,

My Mum has been diagnosed with Ampullary cancer a few days ago. I'm still in shock to be honest... Having lost my dad to cancer only 6 years ago, within a very short time (6 weeks diagnosis to death)... I'm now panicking... My mum has been in hospital for almost 2 weeks now, since being admitted to hospital A and E for jaundice... I've been reading up on it and concerned... We've been told it's inoperable and chemo/ radio aren't an option /viable, due to Mum's small frame and v low body mass... Help!!! /

I'm so sorry to hear about this & you must be at your witts end. 

A big part of me doesn't know what to say to you, & there's also a part that does. 

I have to be respectful of the forum rules & regs on here. I've already had a couple of friendly warnings..

You've said that the hospital can't operate, or offer chemo or radio? 

This is pretty much their tool kit. (cut it out via an op, or radiate it/chemo it). It certainly has its uses & I'm grateful for my 12 hour op! 

What do you do when the medical teams can no longer offer any solutions? 

I can't answer that for you or your family. 

My Dad is 82 & dying of cancer. He's ready to go & it can't come soon enough for him. 

How is it for your Mother? (rhetorical question) 

If you want to continue this conversation, then feel free to pm me. It's fine if you don't as well. 

I'm not allowed to speak freely on this forum. 

Much love to you & your family at this difficult time. X