Ampullary Cancer

Hi. My Husband was diagnosed with Ampullary cancer last August..I would like to ask if anyone on here has or know someone who has the same and what your/their experiences are.His diagnosis came with a 6 to 12 month life expectancy. We got to the 8/9 months and it has now spread to his liver, stomach and pancreas.He only has palliative care as any operation was ruled out due to a life changing stroke in 2006.Chemo was also not an option as only a 1 in 5 chance of any major difference and would have made him very very poorly..

Parents
  • Hi, my husband was diagnosed in July 2018, by August he had the Whipple procedure. Horrendous operation with complications following this. The following March he had 6 months of chemotherapy followed by 6 months of recovery. In this time we were able to get out and about a bit however he was always exhausted. He started chemo again this March as it has spread to lungs, neck, aorta and other areas. With COVID this was then put on hold til June, after a spell in hospital through infection, he has only had another 2 rounds. He is receiving palliative care and we have no idea what the future holds. He is currently in hospital again with an infection. We just want him to have some quality of life, be able to get out and enjoy life, for however long that may be. I must say, the living in limbo and not knowing timescales is the most frustrating thing. Sending positive thoughts your way.

  • Hi,So sorry to hear about your husband.Sadly my hubby passed away on the 8th of november 19. He was given 6 to 12 months but fought for 15..He was unable to have any treatment at all due to a life changing stroke, only a 1 in 5 chance of any recovery. Ampullary Cancer is very difficult to treat.In his last couple of months it had spread very quickly..He was 66.

    Thinking of you both,I empathise with you, take each day as it comes and support each other, do what you can  and when you can..If I can be of any support, please dont hesitate to contact me.Wishing to all the very best and look after yourself too.. x

Reply
  • Hi,So sorry to hear about your husband.Sadly my hubby passed away on the 8th of november 19. He was given 6 to 12 months but fought for 15..He was unable to have any treatment at all due to a life changing stroke, only a 1 in 5 chance of any recovery. Ampullary Cancer is very difficult to treat.In his last couple of months it had spread very quickly..He was 66.

    Thinking of you both,I empathise with you, take each day as it comes and support each other, do what you can  and when you can..If I can be of any support, please dont hesitate to contact me.Wishing to all the very best and look after yourself too.. x

Children
  • Thank you for kind words. I'm sorry to hear you lost your husband, I feel I have been grieving for months now. The disease has progressed as in he was given a time of 2-3 months in November 20. He is at home and doing ok, unable to get out and about but we are taking it a day at a time and seeing family as much as we can. 
    take care.