Hi Auntyb,

I'm so sorry to read about your husband. I can only imagine how hard this is for you all. I'm sorry that I can't offer any advice in terms of similar experiences, but my reply here will at least ensure your post is viewed some more times and hopefully some others will be along soon who can share any similar experiences or who can offer some words.

I hope you find this forum useful and do feel free to browse other topic areas for anyone who is going through or who has gone through something similar. It's a very welcoming community of people.

Wishing you all the best.

Ben

Cancer Chat Moderator

Thank you Ben. We have just had a visit from our cancer nurse specialist, Hubbys cancer is quite rare, but i believe now likened to Pancreatic now that is has spread. We always ask about the progress and what to expect, some things cannot be answered, as each case is different.I have had a wander through the chat forum,and other sites, as yet unable to find anyone who have heard of this type of cancer.I find it a comfort to read and follow others stories and experiences and to know we are not alone.

Many thanks. x

Hi Auntyb

my mum has just been diagnosed with this same cancer ,,,, with a 8/9 month expectancy with no treatment and 15/18 month with chemo. my mum hasnt decided what to do as yet.we are seeing the drs this week. my mum has however ruled out the big op, its all very scary stuff and finding it very hard to cope xx

Hi Auntyb

my mum has just been diagnosed with this same cancer ,,,, with a 8/9 month expectancy with no treatment and 15/18 month with chemo. my mum hasnt decided what to do as yet.we are seeing the drs this week. my mum has however ruled out the big op, its all very scary stuff and finding it very hard to cope xx

Hi Ruby

So sorry to see your mum has the same cancer as my Hubby, First of all we were told 6 to 12 months.That has now passed only by a month, but we are grateful.. The docs can only give an estimated scope of how long a person has left..We were not given any option of Chemo. To be honest I truly believe that the intervention ( in our case) of any long treatment would have had a dramatic effect on Hubbys overall health. He does not have the mobility to cope with some of the effects that would have happened. The operation I believe is called the Whipple, and like you say is  a big one. My hubby is 66 years old and was diagnosed last August..As i write this, he is poorly with pnuemonia and struggling to take his medications orally..Could you kindly let me know more about your mum? If i can answer any questions that you both may have, please ask.. Its a difficult time for you both. xx

Hi Auntyb

im sorry to hear your husband is poorly with Pnuemonia.i hope he is feeling better now.

my mum is 79years old and suffers from C.O.P.D .she had been having intence itching and spots which was misdiagnosed as scabies.unfortunatly they never did a blood test and my mum had 7+ weeks of intence itching which really got her down eventually she went jaundiced and we took her to a+e and they kept her in and did all the relevent tests and scans and have come up with ampullary cancer in the early stage,she had a stent put in to open up the billary ducts and at the moment shes doing ok..today we went to see the cancer specialist and explaned about the treatment option,my mum is now thinking about her options and wether to start chemo, we are hoping to wisk her away on holiday in a few weeks before she starts treatment but of course the travel insurance is sky high.xx

Hi Ruby

Thank you for your reply. Hubby is still poorly, but hopefully in a few more days he will be well enough to get up..I can only imagine how your poor mum must of been suffering with the awful itching,it seems that one thing triggered off another.I hope you are able to take your mum away for a lovely holiday. I know that travel insurance is expensive, I believe there are specialist insurers that deal with people that have disabilites and illness,perhaps have a look at the Marie Curie site? they may have information that could help.I know when we used to travel abroad (prior to cancer) ,the insurance was high, but for us, i think peace of mind was paramount.Before Hubby was diagnosed,he had no symptons of being ill,except a dark urine. I took him the the docs, he had a blood test (fri) I had a call from the Doc on the mon to say take him straight to the hosptial as he was very poorly,there was a bed waiting. In the car I noticed he had gone completly yellow within minutes. He was in hospital just over two weeks,they mentioned gallstones at first, but when they did the endscopy they found a mass instead.He had a plastic stent put in to open the billary, This has since been replaced with a titanium one.We had a 2 week wait before we got the definate diagnosis.I hope that your mum considers the best options for her, its a difficult thing to come to terms with,not just for her, but the rest of the family too.I have support from Marie Curie nurses who sit in overnight so i can rest,and the cancer nurse specialist.Try and get as much information as you can from the oncologist and the support team.We decided not to go to any more oncology appointments, therefore releasing the Doctors time to help other people who can have treatment. xx