Is there anyone on this forum who knows someone or has a cancer called mycosis fungoides sezary syndrome because this is what my 31 year old daughter has , we.ve been told it’s very rare and is incurable her only hope to maybe extend her life is a stem cell donor which I am going to be for her . When she is strong enough to have it, even her consultants are baffled by this cancer, until my daughter was diagnosed with it I had never heard of this cancer right now my daughter is having Pallative chemotherapy but is very weak and in a lot of pain ,she keeps telling me she just wants to go to sleep and see heaven I think she has just had enough but I tell her keep fighting especially for her 4 year old daughter
