Hi there just read your post, i was diagnosed with Mycosis Fungoides 2 years ago at stage 3a. I was told the same thing its rare and not curable. I have tried different treatments but i had bad reactions to them, took off my latest treatment 2 days ago because it wasn't helping and now docter's are offering me a trial which i'm not sure i want. When i first had chemo it made me very ill, my hair fell out and i ended up with cellulities and sepsis and ended up in hospital because i was really ill. As i have tried so many treatments the docters are saying they are running out of options because nothing is helping so don't know how its all going to end, i'm getting really fed up now. So your daughter isn't alone there is a few cases of this cancer. Good luck anyway. 

Hi there just read your post, i was diagnosed with Mycosis Fungoides 2 years ago at stage 3a. I was told the same thing its rare and not curable. I have tried different treatments but i had bad reactions to them, took off my latest treatment 2 days ago because it wasn't helping and now docter's are offering me a trial which i'm not sure i want. When i first had chemo it made me very ill, my hair fell out and i ended up with cellulities and sepsis and ended up in hospital because i was really ill. As i have tried so many treatments the docters are saying they are running out of options because nothing is helping so don't know how its all going to end, i'm getting really fed up now. So your daughter isn't alone there is a few cases of this cancer. Good luck anyway. 

Hiya it’s bittersweet that uve told me you also have mycosis fungoides as I no what a horrible cancer it is to have Being witness to seeing how much my daughter suffers each day coz of it , but then on the other hand it’s good to be able to speak to someone that no,s where I’m coming fm , my daughter was going to be offered a trial but then they found sezary cells in her blood so she’s having chemo at the moment which seems to have made the sezary cells die out of her blood ,but they have offered my daughter to have a stem cell transplant where I am going to be her half match once she’s feeling strong enough to have it done ,my daughter consultant says if it works it could put my daughters cancer in remission have they offered that to you? , feel free to talk to me on this forum when ever u can hopefully we can find support in each other