Hello everybody 

I have been following the all of you day to day as you go through your treatment and ups and downs and I am very grateful for all  the tips and infomation gathered from your experience of going through this awful treatment. My husband has T2N2MO and is hpv16 positive . Very fit 69yr old cycles a lot and very keen on a playing Badmington 3 or 4 times a week. Out of the blue has a lump in his neck and here we are2 months later  about to start 3 chemotherapy sessions and 35 radiotherapy tomorrow .

To say I had a meltdown about all this at first was an understatment I am not really a person who uses social media so it has been very helpful to hear how all of you managed and are managing after treatment has finished.

My husband has not read any of the blog but all he knows is it is going to be very tough but I have not told him anymore and hopefully we can manage with the support of the nurses .O

One problem we have which we were not expecting not a good start  he was told a PEG would be the prefered option, went along to have it fitted and had a really terrible experience. He is not one to complain but when the procedure was finished he was in such a lot of pain. It really traumatised him . Consultation with the doctor  just said they would give him light sedation and he would need to eat something before he left the hospital.   We had been given an information sheet  but did not really expain the whole procedure . So I went for a coffee came back an hour later expecting to find him in recovery and okay to find him in such pain and very distressed the nurse gave him painkillers but that did not work then gave him Morphine . He nearly fainted  It was 6 hours before we could leave because he had not eaten so managed to get him to have some tea and biscuits which helped. Was he unlucky with the procedure. He is in a lot of discomfort and feels he cannot breath he is really miserable and very down about having to try and manage with this inside him as well as having the treatment . Wondered if anyone else has had the same problem and will the discomfort improve . He is talking about having it taken out .  I will see the nurses tomorrow to see if they can advise him. He knows he may need it later in the treatment but any advice from someone that has had one fitted would be helpful.

 Evie