Caring for my mum with brain Metastasis

Hi all, my mum has been battling liver and colon cancer (also mixed with neuroendocrine) for the last 2 years. She has recently been diagnosed with brain Metastasis and is now currently undergoing a round of WBRT to try and relieve some of the symptoms she is having. I feel sick with worry at the moment and currently trying to juggle my two young children, work and helping my mum and I am struggling to know what to do and how to cope. I am a only child and my mum does not have a partner so I feel very alone. My friends and my husband are doing all they can but it doesn't seem to shift the feeling of loneliness I have. I feel so heartbroken for my mum (we have been told she was cancer free 3 times over the 2 and half years) and also for me and my children as I feel robbed. She isn't the same person at the moment at all. I just wondered if anyone else has been through this? Thanks so much  

  • Thank you so much. I will let you know 

     

    Ah that's a good thing to do. I feel the same. I feel so scared that this could happen to me and I hate the thought of my kids having to watch me go through it. I feel so so sorry for her. Such a fiercely independent woman being constantly hit with bad news and illness and pain. My mum is 61. 

     

    Anyway try and enjoy your weekend as best you can :)

     

    Xxxx

  • Hi there, my mums symptoms were that she started to lose the use of her left hand and arm, almost stroke like symptoms. She then started getting headaches and visional migraines. Only this time when they started growing again did she have a seizure. I guess it would vary depending on when the cancer is in the brain. 

     

    Hope that helps 

    Xxx

  • Hey Rmac, 

    How did it all go for your mum yesterday? I was think of you.

     

    Xxx

  • Hi,

     

    It didnt go well really. The brain tumours have both grown again. They are not as big as they were when they were first found but still bigger than after WBRT. They cannot offer any further treatment at this time so it's just a case of helping her with the pain and alot of prayers and positivity. Mum is back on the carrot juice and will do anything to try and stop them from growing anymore. 

    I am trying to take each day as it comes and not look to far into the future as that terrifies me. One day at a time works better I think when there are so many unknowns. I dont want to miss the good days being caught up with the what ifs of the future. This is what I'm trying to do anyway. 

    Hope you and your mum are ok? 

     

    Xx

  • Oh hun, I'm so so sorry to hear that. 

    You are both so strong and good to hear your taking it day by day. 

    Life is so cruel. Breaks my heart. 

    Can they not offer surgery at all? I read that if there is less than 3 mets they can offer it? 

    My mums scan revelled multiple cancer mets. All over. So surgery was not a possibility. 

    My brother was researching and found out about the CAR-T therapy. Take a look. It's fairly new but maybe worth a shot.

    I'm so sad for you. This is such a hard time. Hearing no more treatment is unbearable. 

    Carrot juice... Is that a thing? What's it meant to do?

     

    Xxxz

  • Hi. Sorry to hear your mum has many brain metastes. Honestly it really is but we have to try and be positive for them as well as us! 

    Well my mum has been juicing carrots. It cant hurt I guess? Is that treatment only in the USA that you mention? I also read that milk thistle is good? Pleased to hear you have  brother who is helping you. Good to have other people that can completely relate to what your going through xxx

  • You're right. Being positive is so important, it's how we cope and carry on each day. 

    Oh wow, I didn't even realise that. I'll get some for my mum to try. 

    I'm living in the UK and know its something they have recently started testing. Not sure if it's available in the US. Worth investigating thought, right!

    Xxx

  • Definitely! Well I am in the UK aswell but couldn't see any UK stuff!

    Stay strong and I hope and pray our mums can pull through this!! Be in touch and be sure to comment back on here if you need to talk. 

     

    Xxxx

  • Hi RMAC3060 and LT123, 

    I noticed you were discussing carrots and milk thistle so I just wanted to quickly share some information we have about this on our website.

    Although research has been carried out in to milk thistle there is currently no reliable evidence to show it can be used as a cancer treatment and if you pop on to our science blog you can find out more about the myth surrounding superfoods such as carrots preventing cancer.

    I hope this helps and I wish both your mums all the best on their cancer journeys.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hey Rmac, 

    How are you doing? How's your mum doing?

    My mums finished her 10 days WBRT. She's had loss of strength in her legs, we have to help her up the stairs. She's had some confusion, every now and then and felt tired some days more than others. But nothing too distressing, for now.

    She's just found out today though, that the cancer has also spread to her bones. In her hips bones. 

    So sad. It's like what the hell... Why *** news every single time. What else!

    She starts chemo in a couple of weeks, for 2-3 months. Then more scans. Then more results!

    Not sure what else they will be able to do if the scans don't come back improved, or chemo hadn't worked or helped keep it at bay.

    I'm now 14 weeks pregnant. Just praying I can get through this and more importantly.... My mum too. 

    Do you have any support from mcmillan or anything? 

    I don't know how about getting some support. Like mum's house needs adapting... She can't get in her shower, as it's over a bath.. She could do with a cubical. And with her struggling on the stairs... Maybe she needs a stair lift. 

    And not to mention that all the caring is done by myself and her partner, who works shifts... So it's really difficult to spread the time between us, looking after her. 

    Do you have any support for your mum? 

    Thinking of you all

    Xxx