I’m so sorry to hear this. 

My mum has Glioblastoma so I know how you’re feeling. It’s such a lonely world isn’t it, trying to balance putting your Mother first but making sure you have time to look after yourself as well. 

My Mum is not herself anymore either- very snappy and argumentative. The best thing I can suggest is just to go with it day by day, don’t look too far ahead because it honestly cannot be predicted. Just focus on today, and make sure you look after yourself as well. Knowing that other people can relate to what you’re going through might help the loneliness- I went to a Macmillan support group and it was great, just speaking to people and knowing that we were all fighting the same battle. I hope this helps, keep your chin up. Xx

Thank you so much for your response. I am also so sorry to hear about your mum. 

Watching her battle cancer has been hard enough but this is just awful. She has become disabled practically overnight. When she was having chemo she was still helping with my children, exactly the same person and now she is so different. The steroids have made her look different too. Heartbreaking to watch :(. 

I was going to say about support groups and was wondering whether to go to one or to speak to someone but I dont know whether it will help. I am trying to take it one day at a time. Thanks again  x

I’m sorry you’re having such an awful time, my mums got brain mets too but from lung and now liver and lymph nodes. She too has became disabled overnight, only diagnosed after two weeks of headaches in January this year to now not being able to walk,seizures and personality changes. My mums not the same either, she’s not loving at all anymore and that’s making things so much harder to cope with. I have children too and this is the most difficult experience of my life, i feel in a surreal limbo, as if I’m watching the world keep turning while I’m in a miniature chaotic whirlwind that nobody else is involved in except me and mum and the nightmare that’s unfolding. I hope things get easier for you and your mum, I’m sorry to jump on your thread. But your words sounded so familiar with what we’re experiencing. Best of luck xxx

Hi, thank you so much for responding and sharing your experience. It sounds pratically the same. So sorry you are going though such a hard time. Has your mum undergone any treatment at all? Xx

Also another question is how long have your parents had brain mets for? Mum was only diagnosed about 1 month ago and she has got significantly worse in that time. I'm so worried about the future holds. I cant bare the thought of life without her xx

Hi, mum was diagnosed 22 Jan, they said it was curable and have aggressive treatment, so she had steriotactic brain radiotherapy February and lobe removed from lung to remove cancer( actually only removed a segment as her lung function wasn’t good enough) then April pneumonia and may seizures started again, had another mri found original tumour not responsive to treatment, did ct found activity in remaining lobe of lung in brain in lymph nodes and liver. Now not curative but life limiting, she’s really weepy and not coping well, I hate every second of this, she’s gone from my everything to my fear xxxx I love her so much I hate watching her suffer xxx I want to know timeframes but nobody has said just that it’s terminal , treating her with steroids xx no further treatment xx what about your mum x

Hi oh I'm so sorry that it's awful. Sending lots of hope and prayers

My mum has been battling liver and colon cancer for over 2 years. She had her second OP beginning of Jan which was to remove the last two lymph nodes which contained cancer and 2 weeks after the OP she started to really deteriorate. Its then that they discovered she had two large tumours on the right hand side of her brain. She has just finished today 5 days of whole brain radio therapy but they have also said that it will not increase the length of her life, just ease the symptoms. She is also on steriods but they are beginning to reduce them down. We have a pet scan booked on 24th may with a consultant appointment on 28th so perhaps we will find out more then.

I Just hate not knowing what the future holds, I hate not knowing if my mum will ever come back, I hate seeing her struggle, i hate seeing her so down and depressed. I hate worrying about her every second of the day. 

It sounds like we share alot of the same angst and worry. It is so draining and upsetting. I can totally relate xx

I am sorry, I hope there is something they can do for your mum. I can’t imagine how hard it must be after all she’s been through all this time. We lost my step dad may last year, he had4 year cancer battle, so maybe mum had symptoms we put down to grief as it was only 6 months later she was diagnosed. Life is cruel sometimes, it’s hard to remember it’s good sometimes too at the moment. Children are good at reminding us though. Stay strong ️ ️ ️

Oh that's so sad. We have the same to an extent...my mother in law is also battling womb cancer at the moment. It's just all too much. Absolutely! They are my saving grace! They only people that still make me laugh! Thank you so much. You too xxxx

Awful day today, mums coughed up blood twice and her leg developed a little sore which is now pouring with water, she has really swollen legs and feet but now there’s water pouring down her leg she’s gone from hospital to a hospice for some emotional support for a week or so, because it’s all too much. The hospice are brilliant but it’s been a hard two days... I keep telling you my woes, you can keep telling me yours if it helps. I don’t know why but it helps to just write the words out of my head onto here. I wonder if the coughing blood is the cancer or an infection? The hospice are aware though and they have her leg resting on an absorbent pad, they said not to dress it? X