Grandmothers Lymphoma - advice and support needed

Hi  

im looking for some help and advice, my grandmother has been diagnosed with lymphoma that has caused kidney failure, she was very active and fit and all of a sudden she just rapidly went downhill, she’s hospitalised asleep all the time and when she is awake just really confused it’s breaking my heart to see her like this. The doctors have told us that she may not be fit enough for treatment, and the dialysis is what’s keeping her alive as if she was to stop her kidneys would totally fail. They said as she is right now she would not tolerate chemo. All we can do is hope that her health gets a little better so she can have treatment but weve been told she’s very poorly and the next few days are critical 

we are a really close family, my mum lives with my grandmother and me and my sister visit almost everyday, we do everything together, to makes matters worse I have an 8 year old son who is so close with his nana, and he’s been asking me if she’s going to die. Which I honestly don’t know, we are awaiting a biopsy to stage her lymphoma but we’ve already been told it’s very aggressive. 

I have cried once, the day I found out she had lymphoma and that’s it, I’ve been at the hospital everyday we all have, and she’s just worse everytime I see her, but I don’t feel like I’m feeling anything, like im numb, I’m just taking everything matter of fact and I don’t know if I’m in denial or it just hasn’t gone in but I just don’t feel much, I love her so much and I fe given the circumstances I should be breaking down but I’m just kind of taking it like ok this is happening. Is this normal? To feel disconnected? 

My second question is what do I tell my 8 year old, he’s already upset seeing her so I’ll, and I can’t imagine how he would take the news we could lose her. I don’t want to lie to him but I don’t want to scare him either. How can I speak about the reality of what’s happening with him in a non frightening way? He’s asking me questions about what happens if she doesn’t get better, will she die, he started to get very distressed and I’ve kind of just said ‘don’t be silly she’s in the best place, she will be ok’ as I panicked and didn’t want to see him so upset but I don’t know if that’s the right thing to do, beavause if anything does happen it could shock and hurt him even more.

sorry this has been so long and if you’ve taken the time to read thank you so much, any advice on dealing with my own emotions and helping my son would be soooo much appr

  • Hello JJ1234567,

    Thank you for sharing your grandmother's story - this is terribly sad and it must be a really difficult time for all of you. Don't feel guilty about feeling numb or disconnected - this is your coping mechanism at the moment to carry on with the hospital visits and to support her and you are totally doing the right thing and it is absolutely normal to be feeling this way as many on our forum who have been through this before will tell you. 

    It can be really hard to know what to say to children when something like this is happening to someone that they love dearly and that they are very close to. We have a very useful page on our website on talking to children about cancer which I hope will be helpful to you. It mentions that being open and honest is almost always the best way with children. You can read more about this here and I hope it will give you some good tips to help you have this difficult conversation with your little boy. 

    We're all here for you whenever you want to talk so don't hesitate to come back and let us know how things develop for your grandmother. I hope you won't have to wait too long to get these all important biopsy results. If there is anything you ever wanted to discuss with our nurses after you get your results, they have a free helpline which you are welcome to call on 0808 800 4040 - the line is open Monday to Friday from 9am to 5pm. 

    Best wishes to you, your gran and your little one, 

    Lucie, Cancer Chat Moderator

     

  • Thanks so much for your response. We had the biopsy results and she has high grade non Hodgkin’s lymphoma, the plan is to start on a small dose of chemo called R chop, but yesterday she had a massive rectal bleed of unknown cause :( they say this could set back any plans for chemo, she’s having investigations now to see where the bleed came from, and we are praying that this doesn’t mean she can’t  have treatment.

    feels like everytime we get a bit of hope, something takes it away. Another complication for her, they are also doing a head CT as she has complete double vision and they are querying her brain now too. 

     

    Thanks for the link on speaking to children I will definitely use that! :) 

  • Oh no poor her that is a lot to have to cope with both for her and those around her. I hope you get results soon from these additional investigations and that it doesn't affect her treatment. Fingers crossed as well that the head CT scan doesn't show anything - at least they are being very thorough in their investigations which is good and hopefully you'll have some answers soon. 

    Hope the chat with your little one will go well

    Lucie