Hubby....................

I'm an American married to a Scot. The Scottish hubby was diagnosed on Friday, it's Sunday. Hubby is a GP. They told him before the CT report was even dictated. Professional courtesy me thinks. It's kidney cancer. My dad, who has advanced Parkinson's and chronic lymphocytic leukemia (CLL), Daddy has offered to fly over from California with my stepmother to help us. I'm 51and my dad is still trying to take care of ME? And my husband too :( That alone left me in tears. My dad can't get out of bed on his own, I fly "home" (a slippery concept for an expat)  three times a year to help my stepmother. Yet, despite his own problems and bags of tablets to take five times a day, Dad wants to come help. And my stepmother agreed even though she knows he can't. My in laws, father in law a retired surgeon, have offered me support and to help care for their son, the ONE of their three kids who's never asked for help. Their oldest. 

My brother in law and wife have offered to help me care for my husband, but they have a six month old baby girl and a blind cat. None of them live near us. We are in northeast Scotland, in laws are on an island and brother in law down on the west coast... so the reality is, me and hubby are all we've got. I'm scared to see this very stoic, very has a hard time with emotions, this caretaker of others, I'm scared to see him so vulnerable. I can smell his fear but he won't discuss it. Like me, it's easier to joke than say you're afraid or need help. 

We don't know what his treatment looks like. His kidney mass to visible from his stomach. What does that say? And that's the mass, not his other organs being pushed forward. 

And we thought his fatigue over the past few months was due to him becoming a vegetarian ... (it's okay, we use that for a laugh break a lot)

Just saying hi...and asking how you do it when it's a loved one and not the loved one who calls and says "patient Mr. Smith needs his thingy changed so I'll be a bit late" or getting gifts from his patients when our dog passed away...how do I make HIM realise it's his turn to be vulnerable and go through the hard work? Because I thihnk he's slightly in denial. 

Thanks,

cari

  • Hi cari like you say he could be in denyal (sorry if it's spelt wrong) I blame the phone. How long before some treatment is sorted out. Has he any more scans. Remember most C can be treated its a choice of which treatment I noticed you put two notes on. He might take time to get his head round what to do but being doc he has ideas already. (some people can change attitude when they find out its C) best wishes.

    Billy 

  • Sorry I put two notes on, I honestly didn't know what I posted or sure I posted. I was in California helping my dad which is another complicated thing and came home a week ago and now this. 

    I wish I could answer that question about treatment but his GP was part of an email between the urologist and I believe radiology but I'm unsure of the third person. Essentially they told my husband's GP via email, then my husband's GP phoned him at work which was a bad day to phone since my husband was duty doctor so he was himself dealing with urgent patients himself so a doctor chasing up a doctor on a Friday is hard. All we know is that the cancer is settled in the vena cava from the kidney and the vena cava is the biggest vein carrying blood to the heart so..this is all we know. My husband's GP is on holiday next week but gave him his mobile and he can call another doctor if necessary. If we don't hear from them by mid day, phone calls will be happening. We don't know if the kidney is coming out with the tumor, what risks there are to the whole thing given my husband has SVT a form of tachycardia, and how advanced do they think the cancer is based on the size of the mass. It looks like there are no metastasis but the tumor of very large. Scary large.  

    I am a bit afraid, we're the kind of people who want details.  Knowing there's a cancer but not what the plan is is scary. He imagines they'll put a team together to discuss treatment and let us know.  I'm struggling just watching a man who's usually the caregiver have to give up control and let others make decisions. Even he admits, I don't want to know too much or I'll tell them how to do it differently. But, and I'm laughing, that's  docs for ya. 

     

    Thank you, and again, my apologies for double posting. One of those things I never thought would come into my life in this way. I've love family members to cancer, but it's very personal when it's your husband/wife/partner....

     

    Take care, and thanks,

    cari

  • Don't apologise about posting it does not matter It might get orquard with people replying though. Hope you find something useful about treatment soon,, 

    Billy 

    P.s you've actually put three on don't worry it doesn't matter. Best wishes.