Palliative care team advice? X

Hi everyone, 

Just over 3 weeks ago my dad was diagnosed with stage 4 lung cancer (spread to liver and lymphs). He finally had a biopsy on Wednesday we get the results on the 11th and will find out his options re treatment plan. The palliative care team came out yesterday. They were really brilliant. We talked about the many issues dad is having mainly his anxiety and not sleeping. The doctor said he could have two medications that would be perfect for him. She said GPs don't really like to do it long term but it's great for 4-5 days just to calm dad down and get him sleeping again. Dad was so happy with this. Mum called the surgery yesterday evening (as she was told to do) to find out if the prescription was ready and was told sorry but the GP has refused to do it. I cannot believe it. How is this allowed to happen? We waited three weeks to see them, they were so nice but dads not allowed to have what they told him he needed. It just seems pointless. I just can't get my mind around what that means re his home care. We were looking forward to having the specialists come and see us and they made so much sense and they're coming back next week but what's the point if the GP won't listen to them and do what he's asked? It seems a waste of time. And it doesn't fill me with confidence that the two can disagree and go against each other. I'm so confused. Has anyone had this happen? And is it just something that happens or is it really bad and shouldn't be allowed like I'm feeling right now? 

Thanks so much. 

Tracy. X

  • Hi Billy, 

    It's so all over the place isn't it? It's very difficult to get a routine going I find with my dad he changed a lot but he seems more settled now they've sorted out his meds etc... It's really mad that he's still here after everything they said and everything he went through. The medication they gave him half killed him but now it's sorted out he's lots better. I find that nobody really knows for sure what's going on. Waiting 4 months for a brain scan seems absolutely dreadful I'd ask [@davek]‍ about that, I really would because that seems so wrong. 

    I'm just washing up and having a tidy before getting on with the day, I hope you're ok. Xxxxxxxxxxxx

  • Hi migi, 

    As good as I can be, I'm getting fed up with hot flushes, now weather has warmed up cannot wait for winter, I'll be outside in my tee-shirt just nice,( if we have a winter). Best wishes,

    Billy