Hi MiGi

So sorry for your situation.

I have sort of the same problem with my GP.

I get told a paramedic will come & see me....But never told when....day after day month after month no one comes.

My grandaughter phoned the surgery & did manage to get the nurse to come & see me,she prescribed patches to help with the pain.

At least I am feeling a bit better now just hope I have no problem with repeat prescriptions.

Best wishes

Hiya, 

I'm so sorry for you too. I don't know if your granddaughter can contact Macmillan because surely somebody should be coming to see you at least on a weekly basis. Your GP should be coming to see you at home too. Dads surgery is usually brilliant so I am baffled by this but the whole care thing since he got diagnosed three weeks ago has been appalling. So bad that I can't believe it. I feel like they've left him go home to die and I think we all feel like that to be honest. I hope you're ok though thank you so much for your reply. Xxxxx

I would get back onto the pallative care team as they're bound to have a liason with the doctors surgery and can argue for what you need.  We're just about to have mum home for her last few weeks and now the decsison has been made everyone is very helpful but I did feel like I was bashing my head against a brick wall up until a few days ago with anyone medical.  Now the pallative care team are onboard its seems to have made a big difference.  Good luck.

Hi [@MiGi]‍, I've put this a few places hopefully to find you hospitals have a spare room for people like your dad so they can be together, I think you have to pay but you can check all the best.

Billy 

Hi [@Billygoat]‍ Thank you! 

I haven't been here for a few days, we're having a really difficult time with dad so I've been with him a few nights now. It's all a bit confusing and hard to think straight sometimes. It seems like we might getting some help from Marie curie at some point this week so fingers crossed. How are you doing? I'm hoping you're ok. Xxxxxx

Hi I'm doing OK thanks hope you look after yourself as well silly question I suppose you are sitting with him holding hands and talking to him some people say it relaxes you and him I'm glad you got something sorted about help I know when I tried to get help it took ages before anyone came I won't say to much youl be very busy sorry there is not much to say. Keep well your self. Xx

Billy 

Hi Migi

    I have just been through all of this with my dad. I know how exhausting this is. Dad was home a good 5 days before help started appearing. Those days were the toughest of my life. Your help will come. Macmillan diet everything out. 

        Thinking of you 

           Julie

Just read this post Tracy... I'm so so angry for you ...  some G Ps think they are a law unto themselves...I bet if it was their loved one they would soon find something ...

Now I don't know if this will help but I did aromatherapy years ago ... and one thing I remember is a "lavender" oil massage ... if you get a lavender oil from chemist .. mix it with any oil you have at home .. and sit and massage his feet and / or hands, it really is calming .. it also aids sleep .. it may not take it away but I bet your dad will love it, and it may take the edge off .. just gentle hand massage .. worth a try ..   Chrissie 

What a lovely idea Chriss x

Hey [@Chriss]‍ 

Thats a really great idea. I've found a maseus specialising in holistic therapies to go to mum and dads house once a week to give dad treatment but even though my daughter and I have a drawer full of essential oils I hadn't thought to actually do that myself for him. I've been massaging his neck with deep heat cream which is horrible on the skin so I'm going to ask dad if I can do that tomorrow with lavender oil instead. It'll help the neck pain and the anxiety I think. It's been a bit of a long few days Chris, I've been on the night shift a lot. He gets really bad night terrors and nightmares and wakes up in a state so I've been trying to catch him when he wakes up to give him his meds straight away. Mums been waiting and letting him come around a bit with a coffee but it's not working so I've taken over a bit and set a new routine which is working thankfully!!! Xxxxxx