Up and down days. Brain tumor.

My dad has a rare brain tumor. He had been in an amazing Leonard Cheshire home since June last year on palliative care. I visit every Saturday for lunch with him. Previously I only saw him about 3 or 4 times a year. So him being 30 mins away is amazing. However, whilst in the beginning I was learning about my dad again this last few months he is going down so quick. I ask the nurses how is he doing and they say he's well very chatty etc. But when I see him he is opposite, like he switched off and stared into space or hallucinations like him acting out talking on a mobile. (Holding his hand to his face like he believes it's real) 

My dad is my only family, he is 65 I am 40. I suffer with BPD and Bipolar, so finding looking after everything on my own hard work.

When do I start preparing for his end of life? The Dr and nurse won't say anything.

I guess I'm reaching out to you people here for friendly chat and support.

  • Hi there ...

    There's no hard and fast rules, at the end of our journey... everyone is different .. some go on lots longer then expected .. some a lot quicker ... no one knows for sure ... so if I were you, don't think to much , just enjoy being with him, and whatever he's doing /feeling at the time ... as I look at it, with my sister in late stage dementure. . Go into their world ... where ever they are ... 

    Try to live in the day ... which I know is a big ask, as you have your own problems ... but just know, even holding his hand, will help him more then you know ... sending a vertual hug. .. Chrissie xx