My dad has a rare brain tumor. He had been in an amazing Leonard Cheshire home since June last year on palliative care. I visit every Saturday for lunch with him. Previously I only saw him about 3 or 4 times a year. So him being 30 mins away is amazing. However, whilst in the beginning I was learning about my dad again this last few months he is going down so quick. I ask the nurses how is he doing and they say he's well very chatty etc. But when I see him he is opposite, like he switched off and stared into space or hallucinations like him acting out talking on a mobile. (Holding his hand to his face like he believes it's real)
My dad is my only family, he is 65 I am 40. I suffer with BPD and Bipolar, so finding looking after everything on my own hard work.
When do I start preparing for his end of life? The Dr and nurse won't say anything.
I guess I'm reaching out to you people here for friendly chat and support.
