My son has nasopharyngeal cancer

I’m a mum who’s 30 year old son in Australia has been diagnosed with nasopharyngeal cancer, he’s having 9 weeks chemo, 2 week break, 7 weeks chemoradiotherapy. Anyone had this cancer and treatment or going through it? I’m a bit raw, my sister had terminal lung cancer and lost her battle in September, so this has hit quite hard 

Parents
  • Hi, I am a 31 year survivor of stage 4+  NPC. I was 15 at the time.
    Back then it was very rare. I was the 5th in UK to have it, and I know of 3 ladies in USA who had it around the same time and have survived.
    Nowadays it is not so rare sadly, ,(around 240 per year in UK alone),  but there have been huge improvements in treatments, ( so he won't have many  long term side effects, as people like me who had very high dose of radiotherapy blasted at us have) and survival rates.  There is 80-90% survival rates nowadays and at least 50% of no recurrence within 5 years. There are lots of us in facebook support groups who can answer your questions and give reassurance, but feel free to message me too.
    I know it is daft to tell a mum not to worry, but please take it one day at a time .

  • Hi. I read this post and having recently been diagnosed with NPC I found it positive, a lot of information on NPC is demoralising with survival rates being low yet these are USA figures. 

    I have a scan left and then an appointment with Multi Disciplinary Team to see what my options are, hence I am atill processing the shock.

Reply
  • Hi. I read this post and having recently been diagnosed with NPC I found it positive, a lot of information on NPC is demoralising with survival rates being low yet these are USA figures. 

    I have a scan left and then an appointment with Multi Disciplinary Team to see what my options are, hence I am atill processing the shock.

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