Hello Annie,I’ve stopped by your post as no one has answered you and you must be at your wits end,I’m so sorry your life is so upsetting with the loss of your sister and now the worry of your son.If you go onto the link “ask the nurses” on this forum they will answer you and give you any names of people that have this typeof cancer.Sending big hugs Karen xx 

Hello, I am another "Annie" and I feel for you .  (My son lives in NZ and I cannot help but worry about him even though he is fit and well.)    Are you able to go out there and spend time with your son; I know it is easier to say than do.    You don't give a lot of family information but there again what is there to say apart from the awful news of your son's illness.  I know treatment for cancer has jumped in leaps and bounds in recent years but still......he is your beloved son.  Sorry I cannot help you with your son's diagnosis but I am sending a link to a section of this website which deals with nasopharyngeal cancer.  I hope it is of some use.  Annie

www.cancerresearchuk.org/.../nasopharyngeal-cancer

Thank you so much for your reply, it’s maybe not been answered as it is such a rare cancer but I’ll try asking the nurses. We’re keeping positive and he has started his treatment. Thanks again for replying x

Hi, I am a 31 year survivor of stage 4+  NPC. I was 15 at the time.
Back then it was very rare. I was the 5th in UK to have it, and I know of 3 ladies in USA who had it around the same time and have survived.
Nowadays it is not so rare sadly, ,(around 240 per year in UK alone),  but there have been huge improvements in treatments, ( so he won't have many  long term side effects, as people like me who had very high dose of radiotherapy blasted at us have) and survival rates.  There is 80-90% survival rates nowadays and at least 50% of no recurrence within 5 years. There are lots of us in facebook support groups who can answer your questions and give reassurance, but feel free to message me too.
I know it is daft to tell a mum not to worry, but please take it one day at a time .

Thank you so much for taking the time to reply, and you were so young, you were very brave but have obviously lived long after the cancer but worse the treatment to make you better. Yes, my son has assured me the radiotherapy treatment has come on leaps and bounds, even in the last couple of years. He’s started chemo for 9 weeks first before he has chemoradiotherapy and is being very positive as are we all. He’s on his own but his sister is going for Xmas and I’ll be going soon too. I think it’s the shock as he’s a very healthy young man who looks after himself. I’ll have a look on Facebook and update on here how he’s getting on. Thanks again for your reassurance message. 

Hi. I read this post and having recently been diagnosed with NPC I found it positive, a lot of information on NPC is demoralising with survival rates being low yet these are USA figures. 

I have a scan left and then an appointment with Multi Disciplinary Team to see what my options are, hence I am atill processing the shock.