My dad - The latest

This morning my dad had his first meeting with the cancer team at the hospital. He had been under the impression that everything would be done and dusted within the hour, and that he and my mother would then be able to enjoy a visit to the Birmingham Botanical Gardens. As it happened, it was gone 2pm when they left the hospital.

Having arrived a good fifteen minutes ahead of his 9am appointment time, he was promptly whisked off to have his weight checked, and then ushered back to the waiting room to wait. Unfortunately, due to the cancer team being a member down, there was a significant delay until my dad was seen.

The good news is that they want to perform keyhole surgery on 16th October, which will be brought forward if a slot suddenly becomes available before that date. The bad news is that the tests and scans my dad's had to date haven't given them a clear enough picture as to exactly what they're dealing with. They know there's a shadow on the liver, but have been unable to determine if there's a clear space between his stomach (where the tumour is) and liver.

On a positive note, my dad doesn't need to return for a pre-op meeting, as they were able to rush that through and get it out of the way today. He's been told that he will have a scar that resembles a face (with the nose being just above his belly button).

In addition, my dad was able to meet with a dietician, who told him to dismiss what he had been told after his gastroscopy the other week. His daily dose of Fortisips drinks has been doubled (to 6), advised to drink as much full-fat milk as he can, and re-introduce soft dairy-based food to his diet (i.e. liquidised rice pudding, panna cotta, mousse). This was music to my ears, as 3 Fortisips drinks a day after weeks of barely eating just hadn't seemed enough.

  • Hi [@Superhero-daughter]‍ 

    glad to hear your dads appointment had a positive outcome! Are they hoping to remove the tumor with surgery (hope that’s not being to nosey!). 

    You never know what’s going to happen at these appointments do you!

    Stay strong x

  • Hi [@Sez5711]‍ 

    While it's obviously a relief that the keyhole surgery will be going ahead, it does rather feel as though until it happens, we're still in a state of limbo.

    My dad's not gone into any great detail as to what the surgery will entail. I've no idea how large the tumour is and whether a complete removal would be viable. What he has said is that during the surgery there will be some liquid poured into him, that will then be sucked back out. The idea being to remove any cancerous squatters that may be freely floating around.

    It's weird. There are some days when I think I've got my head around the situation with my dad, and other days when I wonder if it's just an illusion in my mind, and I'm just kidding myself. There's a large part of me that now wants to be spending as much time as possible with my dad, but I don't think he's quite ready for it. As far as he's concerned, I think it's very much a case of life plodding on as normal (or as near to normal as possible). x

  • I know what you mean by that...some days it doesn’t feel real and then bam it hits you. I can be doing things like ‘normal’ then this huge rush of emotion washes over me.

    do you think your dads trying to protect you with the vagueness of his condition and their plan?

    some days I wish I didn’t know as much as I did and often wonder if he hadn’t of had that sharp pain in his shoulder (which led to diagnosis) where would we be now...

    i think up until the last week I’ve been in some sort of denial about the whole situation but unfortunately dad was admitted on Tuesday with an infection that they are still trying to pin point. He looked so sad and vulnerable that it just kind of hit me how strong I’m going to have to be now...

    i hope your dads surgery has a positive outcome...will be thinking of you x

     

  • Hi [@Sez5711]‍ 

    Apologies for the delay in replying.

    In some respects, my dad's been extremely open. After he'd had his gastroscopy the other week, he had phoned me once he'd got back home and told me all about it in full technicolour detail. Whilst it made for uncomfortable listening, I appreciated the fact that he felt comfortable enough to be so straight with me and not sugar-coat the details.

    With the benefit of hindsight, I suspect the reason why my dad's not given away too many details about the surgery is that maybe he's not been told. From what I can gather, the tests and scans my dad's had to date haven't given a clear enough picture as to exactly what's going on, which makes it rather difficult for the surgeon to know at this stage what he will be doing.

    Any more news about your dad's infection?

    If you want to talk, you know where I am. Sending you strength and hugs. x