Really struggling now.

My husband was hospitalised last week with sickness, shivers and what we thought was urosepsis. He has had kidney cancer  since Feb 2015 and had a nephrectomy in July of the same year. His cancer recurred in Sept 2016 and it has been down hill ever since. Hasn't been on treatment for over a year now and things seem to be coming to a head. He was eventually diagnosed with a blockage in the bowel and given an enema. In the week he has been out of hospital he hasn't passed a stool even though he has taken Laxido regularly. It is now 7 days. He sees the urologist on Monday so he might be able to tell us more as he was the one who stopped them operating as he also has MS and too many tumours in his abdomen. He is also very chesty with lots of fluid building up. He has seen the palliative care nurse from the local hospice and now has a new care plan. I know this is the beginning of the end as although he is eating, due to the steroids, everything else is starting to deteriorate. He wants to die at home and the palliative care team said that is fine but when do I ask for their help? He isn't bed ridden and in no pain which again we are told is not unusual. He said he might just about make the World Cup but even that is looking less likely. How do I support him? I feel so helpless. 

  • Do what he asks. ask them for help and advice straight away they will know what to do. you just need to give him love care and comfort tell him you love him every day thats all you can do which realy is the greatest gift you can give .p

  • I'm so sorry this is happening. I know how you feel by powerless. All you can do is love him and try to do everything that he wants. Anything at all that could cheer him up. I brought in my moms favourite jazz music when she was nearing the end and it was beautiful to see her show signs of enjoyment! She was playing "air piano" which is how she grooved to music she loved. If he is still eating, perhaps his favourite drink or snack. If you have a tablet or computer you could set it up so he could watch his all time favourite movies or t.v shows. Anything at all to allow him a few minutes to escape the reality he is currently suffering through. I'm sure you will find things that you know he likes, and you will find ways to make him feel as comfortable as possible. I wish you all the strength.