Hi everyone, this is my first post. My Husband is 47yo and has a Glioblastoma (Diagnosed 4/2017) and now has Melanoma Stage 4. I cant't believe it.
First diagnosed with a grade 2 Brain tumor in 1996. Changed to a grade 3 in 2006. Had Radiation with Temodar.
Continued straight through with the Temodar until 3/2017, then it changed to a Grade 4. Received Surgery followed by Radiation Tx's with Temodar @NY Presbyterian Medical Center. That was all finished by 8/2017.
His Doctors were been monitoring him closely, as the MRI's showed swelling and Necrosis from the Treatments. Waiting for the right time to start some type of Immunotherapy. (They did not not see regrowth)
He always felt sick- sleeping a lot, weak... They said that was expected from the Surgery and Treatments.
Then after Thanksgiving had chest pain. Went to the ER and they found Metastatic Cancer. It's in his Bones,Liver,Spleen,Lung and abdominal Lymph nodes. Biopsies of the Bone/Liver and lymph nodes came back with Melanoma.
He's really declined quickly. Will be starting Avastin,Opdivo and Yervoy.
We're trying to get through each day. He has needed me to care for him and I have take time off of work. (He's on a ton of medications, waking is unsteady and having bone pain)
I will need to get back to work for income and Health Insurance (my 14yo daughter is covered under me. Applying for Family Leave( live in New Jersey, USA) which is only 12 weeks. I'm a nurse- Hospice Nusing Manager for 20 years. Currently work supportive.
I'm completely overwhelmed.