...it has been a long time since I last posted/engaged with the forum, thinking I could do this by myself pretty much but my husband is now in the last few months of life with bowel cancer and I am very tired. It is lonely, having to be strong, with the public face on for so much of the time and not wanting to show how distressed I am to him. I do have very supportive friends who are there for me but breaking down with them is just not what I can do. I have been reading about the Gold Standard Framework that talks about support for carers as being a key component but over the 3 years that my husband has been receiving treatment and now palliative care, never have I been asked how I am or offered support by any care professional that we have come into contact with. I would like to talk confidentially to his palliative care consultant about what to expect etc but he writes quite detailed letters re.what was discussed at appointments to my husband's GP and sends copies to my husband - my husband has only recently allowed me to go to appointments with this consulant so there is an issue of trust too. Thanks for being there.
