Caregiver dilemma

I am new to this site and would like to share my story in hopes that someone can share their similar journey so I know what to expect.

my husband who just turned 65 was diagnosed with colon cancer of the liver in January 2017. A cancerous polyp had been successfully removed from the colon 3 years ago but a rogue cancer cell or two traveled to his liver. His colon is still clear.

This is my dilemma: He is a very private man and doesn't want me to tell anyone.  He also will not allow me to go to the dr or treatment with him.  I only get information that he remembers or chooses to tell me.  I feel so left out and feel I am letting him down because I don't know where and how to help.

another aspect of this is he let's me know that he his ready to go any time God want him and if his first 6 chemo sessions don't cure him he's not doing any more. I know that it takes a lot more than just 6 but he is convinced it's God's plan.  

How do I handle this with out losing my mind. I pray every night and because I teach at a Christian School I have my prayer warriors praying for him.  I just need some concrete answers. I don't really even know his prognosis he's told me so many conflicting stories

If you have a similar situation or have any ideas I would really appreciate the advice

Viv

 

  • Hi Viv,

    Thanks for sharing your story, what an awful dilemma to be in.

    The number of chemo sessions needed varies depending on the individual patient and the type of cancer. I'm not a doctor or anything, but my own treatment for a different type of cancer was for four x three week cycles of chemo, so six sessions might be appropriate in your husband's case.  

    If he believes that life is preordained, he may well believe that six sessions is enough to give him a reasonable chance.   

    Not being with him when he meets the oncologist must be difficult. Again my own experience was that the prognosis I was given was deliberately vague and open-ended. Literally from as little as 2 months if the chemo didn't work up to 18 months, possibly two years at the outside if the chemo worked. That was three and a half years ago - which just shows how inaccurate these prognoses can be.

    Is there anyone you could ask to intervene with your husband who might be able to help make him realise that, however well-intentioned, his shutting you out is causing you unnecessary grief and worry? Many of us try to protect our loved ones from bad news and don't realise how counter-productive this can be.

    Best wishes

    Dave

     

  • Thank- you Dave for your insightful response. What was especially helpful was the different prognosis's you received, he too has been told several and I thought it was just that he was misunderstanding the doctors.   

    May I ask you if you have had additional treatments after your initial 4 x 3 week cycles?

    As far as someone who can talk sense into him there is no one.  He hasn't told his only surviving sister, his son, or our pastor... all of whom he would respect.  I am really stuck.

  • Hi,

    I've not had any treatment since January 2014 when I completed my chemo. My body responded unusually well to the chemo and my cancers shrank by between 50% and 60% and have since stayed dormant. I have CT scans to check every six months and so far I've been lucky enough to be in a stable condition.

    I have been incredibly lucky .

    Best wishes 

    Dave

  • That is pretty amazing,

    My husband just received results from a scan.  He has 2 tumors on is reduced by 50% and one by 25%. The 6 spots on his liver are gone.  So all in all a good report.. He is talking to a surgeon in 6 weeks to see if the tumors can be removed.  I am still getting second hand information because he still doesn't want me there but he actually shared the dr's Report with me. I am feeling a lot better about the whole situation.

     

    Viv

  • Viv,

    That sounds very positive :-)
     

    Good news that he is sharing the Dr's reports with you now. He is probably trying to shield you from any bad news and probably feels he is doing the right thing by you. Us men are strange creatures sometimes!

    Best wishes
    Dave

  • Dave, I think you might be right, He is trying to be a shield and is in his own way showing me how he loves me. I just took it the wrong way. I see that this site is based in England, are you from England too? I was born in Derby and still have family there. Viv