Husband suffering head and neck cancer

Hi my husband was diagnosed with squamous cell cancer at the base of the tongue in April 2014 .30 radiotherapy treatments later we were told the tumour had 'melted away' by the consultant.We went for check-Ups every 6-8 weeks -yes he's doing ok.But I knew he had a swelling on left side of his neck-' don't worry it's lymphadema caused by radiotherapy' they said ( I knew it was more than that!)Anyway fast forward to May 2016 -this swelling started to 'break out' so back to A&E -where he had two biopsies which confirmed a tumour.He now has  a tumour ( inside and outside his neck)growing by the day! Anyway the outcome was he had to go to The Christie (Manchester) -second time for treatment.We decided to go on the clinical trials and he had 5 sessions of the latest treatment-auto immunotherapy.Unfortunately they have decided to take him off the trials as-I can't say that there is no improvement -but he now has tumours in both lungs ( not smoked for 43 years!)some of them have shrunk by millimetres some have grown by millimetres.They are concerned about his neck as there are many blood vessels where it is-so they have decided to put him on chemo .We are very concerned about this naturally.I know this is 'treatable not curable'My husband is a very young 74 always took pride in his appearance,very attractive and was a terrible flirt with the ladies!(only joking!)He has lost 5 1/2 stones in weight.It breaks my heart to see him suffering-I can't believe we are going through this -but you just carry on -our lives have changed for ever. We loved holidays and going out for meals but now Ihave to liquidise all his food-he has 4 fortisips a day -he can't taste anything.Its a nightmare-we have a great family and fabulous friends.Sorry to go on but it's good to share with others.Thanks for reading this post xxxx

  • hi sandrac, i really feel for you,  i know how you feel, as do many others on here, i hope you find the site supportive and helpfull, so many people all going through life changeing cancer, i hope you can feel the support soon, you rant on here as much as you like it helps,  click on peoples picturs boxes and read there battle stories, it really does help, and the ask the nurse section on the left is very good. i wish you all the best, my dads going through the ringer at the moment, but its sooooo important to stay positive if you can, life is so precious...take a look at the inspiration part too    ....cococat

  • Hi, after reading your post I had to respond. My heart is aching for you as your story is so close to home and I know the pain you and your family are going through. My dad also suffered from this terrible cancer at the base of tongue. Unfortunately he passed away earlier this year. It was a complete shock as he was only half way through his treatment at Christies and it was only 2 months after diagnosis. My dad was only 69 years old so a similar age to your husband. I do hope you get some positive news to help you through this.  I did a lot of research when I discovered my dad had this cancer and there are some good outcomes so please be positive. I Just  want you to know there are many people on this site who will be there for you if you need to talk about it. I found it helps to speak to others in the same situation  as yourself. When at home you try to be so strong for everyone else while inside its breaking your heart. Please know I and many on here are thinking of you. X

     

  • Thank you so very much for all your kind words.Its very comforting to know that other people know what you are going through.I don't know what it is but it's true what they say -you get an inner strength from somewhere-I didn't know that I was this strong!I am very involved with my grandchildren which takes your mind off your troubles as they do make you laugh ( & cry!)I have two lovely sons and daughters in laws but one of my son lives quite a distance from us.He rings all the time and he is coming to visit his Dad this weekend which will be nice.You just have to carry on best you can. So sorry to hear about your Dad -too young these days.Keep strong -you must miss him lots Thanks again for your kind words Love Sandra x