New to the forum

My daughter has incurable secondary breast cancer, which has spread to her sternum, lymph nodes and now her liver.  She is 34, with a 4 year old daughter.  I am joining the forum to try and make contact with some other people in the same situation, to swap support and information.

  • im so sorry to hear that about your daughter, so sad, i hope you are all managing to cope, you have come to the right place, i joined only a few days ago, but it has helped hugely already. im sure others with the same kind of cancer will soon be in touch.

  • My partner has Secondary Breast Cancer too. Hers has been in her sternum and spine since diagnosis four years ago. She has had new tumours develop in her spine. 

     

    I understand that cancer moving to the Liver is a whole different matter. From the beginning we have had the support of a local hospice. If you haven't got their support, I would really urge you to get a referral. They are more accessible and their knowledge of symptom and side effect management is superior. 

     

    Eg when I told our oncologist that my partner  was struggling to remember nouns he immediately thought she should be tested for a brain tumour whilst I just wanted someone to look at tweaking her meds. The hospice have tried to help with this. 

     

    It feels particularly painful with a small child involved. At the risk of being to blunt, can I urge you to video your daughtee now, before she changes. My partner ha gained weight, lost Wright and her voice has drastically changed during our journey.  

     

    Apologies for any typos, I am typing on my phone and I can only see about two thirds of each line of text and only two lines at a time. 

  • Thanks for your message - I think the video idea is a really good one, and we should do that.  We're all going to a bonfire party tomorrow, so I will start there, and build a library for my granddaughter.

    Sorry to hear about your partner - this is S***, isn't it?

  • Thanks for replying - it's taking me a while to find my way round the site, but I'm sure this is going to be helpful.