So many emotions

My Beautiful Mum is currently in hospital for the fourth time in six weeks , she was diagnosed with bone cancer in Nov 2015 and recently in May with mestates of the meninges which had apparently arose from the breast cancer she had 4 and a half years ago .  I feel very angry and very bitter at the sheer unfairness of this cruel disease you see my Mum was diagnosed ten years ago with acute myeloid leukaemia and fought like a Trojan , received  a  successful bone marrow transplant from her brother and got better after approx two years in and out of hospital , many times in isolation after numerous infections but her will to live remained strong . Sadly she then got bowel cancer , another fight , then breast cancer another fight she was determined to win . When last Nov the bone cancer was diagnosed she was told it was uncurable ,all the fight she showed with the last cancers went with the word uncurable . She received chemo to slow down the progression which again made her wiped out , suddenly she complained of fuzziness in her head and a feeling of being spaced out , she would get confused have limited movement etc , over the last couple of months I've seen my beautiful courageous Mum become more depressed and forlorn and all hope she had diminished . When the meninges was diagnosed she decided to take the radiotherapy offered as she couldn't continue the chemo until some of the symptoms of the meninges were taken care of . So now six weeks after the radiotherapy Mum is too poorly to restart the chemo for the bone cancer . As a family we are in a nightmare we can't seem to wake up from. 

On Thursday Mum had an episode , she couldn't focus she started muttering , no sense of her surroundings and sadly couldn't remember who my Dad was or any of her three children , absolutely heartbreaking .  

So now where are we up to well thankfully Mum can't remember much of Thursday only the sound of the sirens on the ambulance that brought her to hospital . She is still coherent some of the time , she is very poorly they tell us but she remembers who we are now thankfully . The doctors tell us she as pnemonia and she is being treated with antibiotics . W sit by her bed watching her sleep , my Dad rarely leaves her side , they have been married nearly 55 years , and as their daughter I feel helpless. Not only is Mum a constant worry but I worry over my Dad and he's well being also  . I am extremely lucky that I have such a fabulous family and a very supportive husband but I feel very alone . I feel that I want to be at Mums side continuously but emotionally I'm drained , I feel I've been grieving for Mum since last Nov . My emotions turn in seconds from anger to bitterness , to sorrow to sheer desperation . 

  • Thank you Gus

    I should be returning to work tomorrow but can't face it . I'm gonna take some more time to try and get things straight in my head . I miss my Mum terribly and my only comfort is that she's in no more pain now . 

    I try to keep strong to look,after Dad and my siblings but I hate trying to be strong all the time

  • Hang in there Maxine. You don't have to be strong all the time. The other family members have to chip in and help or hire a nurse's aide. You have to sit back, take me time, exercise, hobby, something you enjoy doing and let the stress level come down. It will serve to recharge the batteries so you can do your part helping out but you must pace yourself. I wouldn't dwell on your mum's passing. I think that can just deepen your feelings of grief. Hope matters get better. God's blessings!!!

  • Hi Maxine. I know how you feel. For us it has been going on now for 7 years and we are approaching the end for my son, who will probably not reach his 22nd birthday. I just think that for the last 7 years, if you had asked me if he would have got to his 16th birthday when he was first diagnosed with cancer. I would have said I don't know. He is approaching 22nd birthday and I keep thinking thank god for every day we have had with him since he was originally diagnosed in 2009.
  • Hi maxine 

    I'm sorry to hear about your mum. After 8 years of fighting cancer my mum too was diagnoased with metastatic breast cancer which had spread to her bones.  5 years later and she's still with us but things are going downhill fast. The tablets she was put on to control the cancer no longer work and she is now on chemo tablets. She had a course of normal chemo before this.  We have no found out it has spread to all if her bones and her shoulder and elbow have broken under the strain. I too have a supportive husband and plenty of siblings but always feel alone. Any yime you want to talk I'm here z