Support needed for mother of son with terminal cancer

 

I am in such pain and need some advice.

Last Christmas we were told that my indescribably wonderful 24 year old son's cancer is terminal and that he only has months to live.   I found that during the 3 years he had treatment I had support from the staff at the hospital where he was being treated but now that we are no longer going there I have no support.  I know that support will be available once he dies but at the moment I do not know of anyone in my situation. 

I would very much like to know whether there is a forum or group for  parents of young adults with terminal cancer. 

Thank you very much.

 

 

 

 

  • hello i found out three days ago my son has bowel lung and brain tumour no cure i have been told heis in hospital but with covid i cannot visit i ring and he trys to talk but does not want to , i read somewhere that they detatch themselves from the real world and family this is part of the journey, he still loves me and wants the best for me and me him but it is sor hard not being able to be with him

  • Hello Granie,

    This is the hardest of times, your son will most likely be in shock, you will be in turmoil, I remember the agony of it all and I was at least able to be with my son, he had 6 months from diagnosis before going into a hospice, he lasted 3 weeks, he was 33. I don't have any words that can comfort you the in this situation. You could try the Macmillan helpline, I found them quite helpful at the time, so sorry not to be of any help, other that to say I'm thinking of you. Take care, Vera X 

  • Hello, I haven't been here for some time.

    just wanted to say after all this time, that I contacted the compassionate friends and I have had lots of support from them, so thank you for telling me about them. 

    I just didn't come back here, I don't know why, just coping as you probably know to get through each day.

    so don't know if you'll read this, but thought I'd put this here.

     

    hope you're doing ok and keeping well. X 

     

  • Thank you Vera, the doctor has told me he has had this for about 9 months, can \i ask do you think he is nearing his time 

  • Oh Granie, I couldn't possibly say. I think it might be helpful for you to talk to a professional. 

    My thoughts are with you, can't imagine how this feels for you, not being able to see your son.

    I wish there was more I could say to help, so hard for you. So sorry you're having to go through this. 

    look after yourself, Vera X