Hi

Can I ask if by 5-cycle you mean fifth course of chemo?

Hello Boo2,

A big welcome to our forum. Your story really reminded me of that of Mandymops. Her husband also has Glioblastoma Grade 4 and she feels just like you at the moment.

Do say hello to her on her thread here and she has also been posting here about how she has been feeling having to deal with all this. She is a lovely lady and I am sure you will have a lot to share with one another. I will make sure also to mention your thread to her.

I hope this forum will bring you both a little comfort in knowing you are not alone during these incredibly difficult moments.

Best wishes,

Lucie, Cancer Chat Moderator

Hi Boo2, welcome to this wonderful place with wonderful people. My husband too has the same as your husband, had the surgery, 6 weeks  of chemo and radiotherapy concurrent with each other, and one lot of chemo in his 6 cycle. No more at present as has developed heart failure - cardiomyopathy.  I am more than happy to try and help you as much I can, there are some amazing people on this forum, esp Jules54 who has listened to me for ages now and offered so many kind words and support. I'd have been lost without her at times.  My husband is 46, I am 49, with a 10 year old son and a 19 year old daughter. Please use this forum to air your thoughts and worries. It does help, Mandy xx

Hi, sorry been a busy week, nice to here from you, yes i meant this is his 5th time taking chemo tablets. It would have been if things had'nt gone a bit wrong. 

Thank you for your kind words. My husband is 42 and was diagnosed in May 2015 we have  2 sons 21 year old and a 13 year old. We were doing ok the doctors said the chemo was working there was signs of improvement in the growth. On the weekend he had 2 seizures and went into hospital where they did a CT scan witch showed some changes now we are waited for a MRI.  Doctor says it looks like new growth and has stopped the chemo.  Now i am scared ,he sleeps alot, he speech is muddled and i would like to know what this means but i am to scared to ask the doctor.  Is this normal ?

Hi Boo2,

I am so sorry to hear your husband is not so good at the moment.  It is very easy to jump to conclusions but my advice is to wait for the MRI. This will show the Drs exactly what is going on and whether things have changed. If he is on new medication, this could make him very sleepy and not right.  My husband started on a new cardiac drug which made him feel so sick that he took to his bed and slept all the time, and hardly drank and couldn't eat and ended up in hospital. They stopped the drug and he no longer feels sick.  You must talk to the Drs, for you may be worrying and there is a simple explanation. Try and have a word with them and express your concerns and hopefully they can help. Good luck, Mandy x

Thanks for your reply it means a lot.  Talked to the doctor today and they said there is signs of new growth.  They said he could try a combination of chemotherapy drugs, tablet's and intravenous drugs that you take for 10 days. He has decided not to have treatment and let nature take it's course. It's hard but I have to deal with his choice. Hope you are getting on better.

I am so sorry that it has come to this point for your husband and yourself.  I can totally understand how he has come to that decision. It will be so hard for you and your sons.  And for him to have come to that decision too.  I wish you all the best and I'll be here if you need someone to talk to, take care, xx