Life, but not as we know it!

My husband had a tumour removed from his spine in 2011, It was Plasma Cytoma, which has since fully developed into Multiple Myloma, which is a cancer of the bone plasma affecting his spine, ribs, pelvic area & long bones. He began chemo is February 2015, & has been on varying cocktails ever since, but he also has kidney damage, & the radiotherapy from his plasma cytoma has damaged his heart. He has had a poor Christmas, lots of pain, exhaustion, bad temper (chemo induced we think). He can do very little at the moment except wash & dress himself, which really takes it out of him. The reason for this mail is to see if anyone else feels as I do. Angry that our lives have been devestated (I am 64, Chris is 66). He is in bed most of the day as the pain in his spine is now so severe he needs to be laying down. So, I walk the dogs, do the housework, read books, watch TV & drink wine. Apart from the few wonderful interludes when family & friends intervene (but even then I feel guilty if I go out & leave him), I sit & cry, or feel sorry for myself, or find myself asking "anything you need?", which equally frustrates him. I know this is an incurable/terminal illness, but I can't bear to see my once very fit, tall, athletic husband, shrivel away to a skeletal wreck. He has already lost 4" in height as his spine curves over. 

We are being robbed of happiness in our retirement - well, we have been robbed of our retirement - I am angry, sad, & feel guilty that this is how I feel. Does anyone recognise this? Thankyou

Parents
  • Hello dear, your words resonate with me. My husband & I, thirty years old, are dealing with some similar feelings. You and I are at different phase in our lives, perhaps even opposite phases, but the shared feelings are there. We too feel robbed of our lives as we once knew and so painfully frightened that our future could be robbed as well..

    I am finding it very hard to put my feelings into words at the moment, but would love be in touch, so feel free to. I'll add you as a friend and we can write if you would like.

     

    Warmest of regards & would love to be in touch with anyone else that feels the same - so please message. 

Reply
  • Hello dear, your words resonate with me. My husband & I, thirty years old, are dealing with some similar feelings. You and I are at different phase in our lives, perhaps even opposite phases, but the shared feelings are there. We too feel robbed of our lives as we once knew and so painfully frightened that our future could be robbed as well..

    I am finding it very hard to put my feelings into words at the moment, but would love be in touch, so feel free to. I'll add you as a friend and we can write if you would like.

     

    Warmest of regards & would love to be in touch with anyone else that feels the same - so please message. 

Children
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