Not really sure where to start

Not quite sure if I want answers or just someone to listen!!

 

My husband has cancer... To cut a VERY long & complicatyed story short, he has a brain tumour on his coccyx. At this present moment he is 250 miles away awaiting a MRI under general anastetic tomorrow morning, whilst I'm sat at home worrying yjyself silly with our 4 year old son.

In the near future (start of December) he is hopefully going to have an operation, in London -250 miles from our home. It involves him having a majoupr part of his intestines/bowels (?!?!) Removed - ending up with a bag of some description, the tumour.(the size of grapefruit/small melon) and then a skin graft over the area. 

 

Because of my son, I cannot be there, which leaves me full of guilt. His father is with him but I feel on the outside, I am unable to attended appointments - so iget all info second had. And there are risks with the surgery... It cold damage his sciatic nerve, and leave him unable to walk, he will definatly have a bag of some description and affect his sexual function.

 

I'll admit, I'm struggling, some days I don't know hjow to cope. I have a 4 year old to look after whose obviously excited about xmas. Hubby will probably miss his first Xmas concert and will probably be in over Christmas.

 

To top it all off he has another tumour in his chest which is in a precarious position and cannot be removed.... This will probably eventually kill him :(

 

Sorry to be so negative.... Sometimes I need to let it out x

  • Hello LucyLou79,

    You've done the right thing to join this forum as it certainly sounds like you could do with a big hug right now and with support from people who understand what you are going through. 

    Having a little one to look after must make it extra hard for you as you are unable to be there with your husband. I know this feeling of guilt and constant juggling well having small children myself but don't worry, there is nothing you can do as your little one needs you too and can't look after himself on his own!

    It must be very frustrating for you to be getting all the information second hand as you cannot be there for appointments. If there is anything you are unsure about or that needs clarifying, don't hesitate to give our cancer nurses a ring on this free number 0808 800 4040, Monday to Friday, 9am to 5pm.

    How did the MRI scan go? I hope it was ok and that he reacted well to the general anaesthetic.

    Best of luck to him for the operation. I can understand why you may not be feeling very festive at the moment whilst still having to do all the Christmas things for your little one. Try and enjoy his first Christmas concert though - I bet it will be very cute!

    I will now let our other members come and say hello!

    Best wishes,

    Lucie, Cancer Chat Moderator