Please help us

Hi, sorry to bother you all but I didn't know where else to turn. My mum (49) was diagnosed in January this year with secondary breast cancer in her bones (skull, hips, ribs, spine, pevlis, shoulder) since being breast cancer free for the last 9 years. This came as a huge shock to our family (me being the youngest - 20, my older sister 22, and my dad). My mum is currently on a trial called Manta which has been keeping her stable since January which is fantastic. The treatment involves her having the baseline denosumab and faslodex injections, however she is also on some other tablets which she takes every Friday and Saturday in the morning and evening. On the days that my mum takes these tablets I cannot stop her crying all day long - yesterday it was from 6am in the morning and when I returned from work at 4pm she hadn't stopped all day and continued through the night. She tells us that it isn't the tablets that she can't handle she just gets herself in to a really dark space and cannot come out of it during those days. She constantly apologises for 'ruining our lives' which couldn't be further from the truth - she is the best thing in all our lives. She is considering coming off the treatment which obviously from a selfish point of view none of us wan't as it is currently working at the moment and we will eventually run out of treatment options. During Sunday - Thursday we have some really great 'normal' days and I was just writing here to see if any of you had any coping mechanisms or anything you could suggest we try on the Friday and Saturday as seeing my best friend sob her heart out constantly all day without pausing is emotionally draining. We can't go on like this, please help us.

Parents
  •  

    Hey Samantha your mums story sounds exact same as mine with the cancer..it is hard but you will get there..set her something to focus on..mum&myself are organising a girls night in,in October to raise money for cancer..we done it last year&praised 500&she enjoyed so she's planning it again texting her friends etc..

    Haven't been on this on long time, but it amazing how many same stories are out there. I'm 29&only girl so I see&ankle all that goes on with my mum..I do be strong in front her which is hard but she does talk and of recent has started opening up more from being diagnosed with cancer to bowel now also...going by her motto..one day at a time if not hour

    Take care hear from you sn.xx

     

Reply
  •  

    Hey Samantha your mums story sounds exact same as mine with the cancer..it is hard but you will get there..set her something to focus on..mum&myself are organising a girls night in,in October to raise money for cancer..we done it last year&praised 500&she enjoyed so she's planning it again texting her friends etc..

    Haven't been on this on long time, but it amazing how many same stories are out there. I'm 29&only girl so I see&ankle all that goes on with my mum..I do be strong in front her which is hard but she does talk and of recent has started opening up more from being diagnosed with cancer to bowel now also...going by her motto..one day at a time if not hour

    Take care hear from you sn.xx

     

Children
  • Hi, so sorry to hear about your story too.

    We have lots of things to focus on during her good days such as planning my sister's wedding and my 21st birthday but on her treatment days these are the things that make her even worse.  I can't get her out of bed to even do anything it's so horrible. 

    I just want to be able to help her.

    TThank you for your words and I hope you are okay xx