Losing my mum

My 80 year old mum has recently been diagnosed with muscle invasive bladder cancer. She is too weak to have any treatment and according to mums consultant the prognosis is not good and therefore I am basically waiting for mum to pass away. Mum has been home for nearly a week. Is eating and drinking but only tiny amounts. She is in constant discomfort from her catheter and the nursing team are aware of this. I have moved in with mum to care for her but I am having to juggle do many things. I have custody of my seven year old granddaughter and I am finding that I cannot do as much or am too tired to to bother. I feel awful about this and I am also quite shocked that the only nursing input from the district team is one visit once a week! Where can I find additional support as feeling so low.

  • Hi Topsy

    Sorry about your mum and the pressure you are under at the moment.

    I am sending you a link to our information on help at home for someone with cancer. 

    Don't forget too that you can call our nurse team for advice.

    Calls are free from landlines and most mobile phones on: 0808 800 4040 from Monday to Friday, 9am to 5pm.

    Best wishes

    Jane

     

     

  • Hi Topsy,

    I am so sorry to hear about your mum, I can't imagine how are it must be for you with your family situation as well. My mum has acute myeloid leukaemia and I have 7month little girl, it can be so hard to go and visit her in hospital. Before Christmas she was home for about 4 weeks, it was lovely to have her back after she was in hospital so long, but it was extremely draining with a little one as well. Having a seven year old to occupy I am sure is exhausting with everything else you are having to cope with! But hang in there, I am sure you are doing your best. 

    Have you spoken to your council about carers? 

    I am sorry I can offer no more advice, but my thoughts are with you, your mum and family x