Advice on caring for my Mum during chemo.

Hello... So what started as breast cancer in my mum has spread to the lymph nodes and bone since being diagnosed 3 years ago. She has been having radiotherapy and getting injections to keep it at bay and has now found out it has spread further to other bones and chemo is on the cards.

My parents live in Ireland while Im here in London. Although in good shape for her age (Mam is 75) Im thinking I should move home to help her while she is having the chemo and afterwards. Someone suggested that it is after the chemo that people need more support? Im pretty clueless about the whole thing really and could do with some rough advice on how long it can take some people to get back on their feet again. At the moment we dont know the kind of chemo she will be having which may make it difficult to advise on (im guessing different kinds may have an effect on her side effects?) But any thoughts are welcome.


Also would appreciate if anyone can suggest some books that may be worth reading to help me get my head around this. I feel quite guilty that Im not there for her more, and other bits from growing up. Having difficulty figuring out the best way to express this before its too late.  Also want to learn more about the practical parts of helping someone and what to expect as things progress.
 

Parents
  •  

    Hi Eileen, I am sorry to hear what your Mum and family are going through.  McMillan are a huge source of information - they should be based at your local hospital.  Usually hospitals also have a Big C centre nowadays with a lot of literature.  McMillan can also offer you advice once you know the drugs Mum will be having.

    I personally find that it is the practical things I need help with being on chemo.  The housework, garden, and someone to cook a few meals and put in the freezer so I get a ffew days respite from having to worry about cooking.  This will help Dad too, who will now probably find himself with a much bigger workload at an age when his energy levels have depleted somewhat.    If you cant get over to help with these things, could you maybe arrange help and chip in towards the cost?

    At this moment in time, try to get over to see your parents as much as poss - you will be in a much better position to judge the situation that way and see how they are coping.  Tell your Mum how guilty you feel and get it off your chest, she may be able to reassure you.

    It is hard to know how she will feel after the chemo - you may find she continues on it for some time if her cancer is incurable but treatable. I have been on various drugs for 3yrs now.  Its all a guessing game just now and will need a bit of a wait and watch approach.  Maybe you could be available when she next has an appointment and go along with her so you can talk to the consultant or chemo team directly and find out more about their thought on her prognosis.

    It is a hard situation when family are ill and you do not live nearby - just support her as much as you can in how she chooses to live this phase of her life and resist the temptation to tell her what she should be doing.  When you are in your Mums or my situation, that is the most annoying and hurtful thing anyone can do.  All the very best to you - hope Mums treatment goes well and let us know how she is if you get a chance.    x

     

Reply
  •  

    Hi Eileen, I am sorry to hear what your Mum and family are going through.  McMillan are a huge source of information - they should be based at your local hospital.  Usually hospitals also have a Big C centre nowadays with a lot of literature.  McMillan can also offer you advice once you know the drugs Mum will be having.

    I personally find that it is the practical things I need help with being on chemo.  The housework, garden, and someone to cook a few meals and put in the freezer so I get a ffew days respite from having to worry about cooking.  This will help Dad too, who will now probably find himself with a much bigger workload at an age when his energy levels have depleted somewhat.    If you cant get over to help with these things, could you maybe arrange help and chip in towards the cost?

    At this moment in time, try to get over to see your parents as much as poss - you will be in a much better position to judge the situation that way and see how they are coping.  Tell your Mum how guilty you feel and get it off your chest, she may be able to reassure you.

    It is hard to know how she will feel after the chemo - you may find she continues on it for some time if her cancer is incurable but treatable. I have been on various drugs for 3yrs now.  Its all a guessing game just now and will need a bit of a wait and watch approach.  Maybe you could be available when she next has an appointment and go along with her so you can talk to the consultant or chemo team directly and find out more about their thought on her prognosis.

    It is a hard situation when family are ill and you do not live nearby - just support her as much as you can in how she chooses to live this phase of her life and resist the temptation to tell her what she should be doing.  When you are in your Mums or my situation, that is the most annoying and hurtful thing anyone can do.  All the very best to you - hope Mums treatment goes well and let us know how she is if you get a chance.    x

     

Children
No Data